Carla Saunders1, Afaf Girgis. 1. Centre for Health Research & Psycho-oncology, University of Newcastle, New South Wales. carla.saunders@uon.edu.au
Abstract
OBJECTIVE: The goal of this exploratory study was to identify and describe notable cases of consumer involvement in Australian health research to generate insights and concepts, and assist others to develop and build capacity in this area. METHODS: In-depth interviews were conducted with nine organisations known to be active in this area. The interviews were supplemented with content analysis of relevant documentation to further examine involvement strategies. RESULTS: Key attributes that aid consumer involvement competence and contribute to success in this area are identified, including the availability of time, resources and supporting policies, principles and attitudes that securely back opportunities for consumers to be involved in meaningful ways. CONCLUSION: This study provides an important contribution to our knowledge and understanding of consumer involvement practice in Australian health research. The examples do not offer definitive approaches but rather highlights and lessons drawn from experiences in consumer involvement across a diverse range of organisations.
OBJECTIVE: The goal of this exploratory study was to identify and describe notable cases of consumer involvement in Australian health research to generate insights and concepts, and assist others to develop and build capacity in this area. METHODS: In-depth interviews were conducted with nine organisations known to be active in this area. The interviews were supplemented with content analysis of relevant documentation to further examine involvement strategies. RESULTS: Key attributes that aid consumer involvement competence and contribute to success in this area are identified, including the availability of time, resources and supporting policies, principles and attitudes that securely back opportunities for consumers to be involved in meaningful ways. CONCLUSION: This study provides an important contribution to our knowledge and understanding of consumer involvement practice in Australian health research. The examples do not offer definitive approaches but rather highlights and lessons drawn from experiences in consumer involvement across a diverse range of organisations.
Authors: Wavne Rikkers; Katrina Boterhoven de Haan; David Lawrence; Anne McKenzie; Kirsten Hancock; Hayley Haines; Daniel Christensen; Stephen R Zubrick Journal: PLoS One Date: 2015-05-04 Impact factor: 3.240
Authors: Caroline L Miller; Kathy Mott; Michael Cousins; Stephanie Miller; Anne Johnson; Tony Lawson; Steve Wesselingh Journal: Health Res Policy Syst Date: 2017-02-10