Literature DB >> 22482187

An overview of the effects of sickle cell disease in adolescents.

Luhanga Musumadi1, Neil Westerdale, Helen Appleby.   

Abstract

Specific complications of sickle cell disease (SCD) may emerge during adolescence, and education of patients and families is vital during transition from paediatric to adult health care. Adolescents with SCD have to adjust to the constraints of living with a lifelong chronic condition, and compliance with self-care and medical treatments can be problematic. This article explores potential opportunities for intervention, and examines how the role of the adolescent clinical nurse specialist is pivotal in supporting patients and families during this transition.

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Year:  2012        PMID: 22482187     DOI: 10.7748/ns2012.02.26.26.35.c8973

Source DB:  PubMed          Journal:  Nurs Stand        ISSN: 0029-6570


  3 in total

1.  Improving health outcomes for young people with long term conditions: The role of digital communication in current and future patient-clinician communication for NHS providers of specialist clinical services for young people - LYNC study protocol.

Authors:  Frances E Griffiths; Helen Atherton; Jack R Barker; Jonathan Ak Cave; Kathryn Dennick; Peter Dowdall; Joe Fraser; Caroline Huxley; Sung-Wook Kim; Jason J Madan; Harjit Matharu; Luhanga Musumadi; Tom M Palmer; Moli Paul; Sailesh Sankaranarayanan; Anne-Marie Slowther; Mark A Sujan; Paul A Sutcliffe; Jackie Sturt
Journal:  Digit Health       Date:  2015-06-29

Review 2.  Low-dose hydroxycarbamide therapy may offer similar benefit as maximum tolerated dose for children and young adults with sickle cell disease in low-middle-income settings.

Authors:  Baba Psalm Duniya Inusa; Atoyebi Wale; Abdul Aziz Hassan; Tushar Idhate; Livingstone Dogara; Ifeoma Ijei; Yewen Qin; Kofi Anie; Juliana Olufunke Lawson; Lewis Hsu
Journal:  F1000Res       Date:  2018-09-04

3.  Eliciting the Impact of Digital Consulting for Young People Living With Long-Term Conditions (LYNC Study): Cognitive Interviews to Assess the Face and Content Validity of Two Patient-Reported Outcome Measures.

Authors:  Jackie Sturt; Thandiwe Rebecca Dliwayo; Vera Forjaz; Kathryn Hamilton; Carol Bryce; Joseph Fraser; Frances Griffiths
Journal:  J Med Internet Res       Date:  2018-10-11       Impact factor: 5.428

  3 in total

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