Literature DB >> 22445276

Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives.

A Condino-Neto1, J L Franco, F J Espinosa-Rosales, L E Leiva, A King, O Porras, M Oleastro, L Bezrodnik, A S Grumach, B T Costa-Carvalho, R U Sorensen.   

Abstract

Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy.
Copyright © 2011 SEICAP. Published by Elsevier Espana. All rights reserved.

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Year:  2012        PMID: 22445276     DOI: 10.1016/j.aller.2012.01.003

Source DB:  PubMed          Journal:  Allergol Immunopathol (Madr)        ISSN: 0301-0546            Impact factor:   1.667


  4 in total

1.  Collaborating to improve quality of life in primary immunodeficiencies: World PI Week, 2013.

Authors:  Ricardo Sorensen; Amos Etzioni; Ahmed Aziz Bousfiha; John B Zeiger
Journal:  J Clin Immunol       Date:  2013-07-11       Impact factor: 8.317

2.  First report of the Hyper-IgM syndrome Registry of the Latin American Society for Immunodeficiencies: novel mutations, unique infections, and outcomes.

Authors:  Otavio Cabral-Marques; Stefanie Klaver; Lena F Schimke; Évelyn H Ascendino; Taj Ali Khan; Paulo Vítor Soeiro Pereira; Angela Falcai; Alexander Vargas-Hernández; Leopoldo Santos-Argumedo; Liliana Bezrodnik; Ileana Moreira; Gisela Seminario; Daniela Di Giovanni; Andrea Gómez Raccio; Oscar Porras; Cristina Worm Weber; Janaíra Fernandes Ferreira; Fabiola Scancetti Tavares; Elisa de Carvalho; Claudia França Cavalcante Valente; Gisele Kuntze; Miguel Galicchio; Alejandra King; Nelson Augusto Rosário-Filho; Milena Baptistella Grota; Maria Marluce dos Santos Vilela; Regina Sumiko Watanabe Di Gesu; Simone Lima; Leiva de Souza Moura; Eduardo Talesnik; Eli Mansour; Pérsio Roxo-Junior; Juan Carlos Aldave; Ekaterine Goudouris; Fernanda Pinto-Mariz; Laura Berrón-Ruiz; Tamara Staines-Boone; Wilmer O Córdova Calderón; María del Carmen Zarate-Hernández; Anete S Grumach; Ricardo Sorensen; Anne Durandy; Troy R Torgerson; Beatriz Tavares Costa Carvalho; Francisco Espinosa-Rosales; Hans D Ochs; Antonio Condino-Neto
Journal:  J Clin Immunol       Date:  2014-01-09       Impact factor: 8.317

3.  Quality of Life, Treatment Beliefs, and Treatment Satisfaction in Children Treated for Primary Immunodeficiency with SCIg.

Authors:  Serge Sultan; Émélie Rondeau; Marie-Claude Levasseur; Renée Dicaire; Hélène Decaluwe; Élie Haddad
Journal:  J Clin Immunol       Date:  2017-06-08       Impact factor: 8.317

4.  Primary Immunodeficiency Diseases in Aguascalientes, Mexico: Results from an Educational Program.

Authors:  Aristoteles Alvarez-Cardona; Sara Elva Espinosa-Padilla; Saul Oswaldo Lugo Reyes; Javier Ventura-Juarez; Jaime Asael Lopez-Valdez; Lucila Martínez-Medina; Alberto Santillan-Artolozaga; Adriana Cajero-Avelar; Alma R De Luna-Sosa; Luis F Torres-Bernal; Francisco J Espinosa-Rosales
Journal:  J Clin Immunol       Date:  2016-02-22       Impact factor: 8.317

  4 in total

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