OBJECTIVE: This study investigated parent-adolescent agreement in long-term psychosocial and quality-of-life (QoL) outcomes. The sample comprised adolescents aged 15-18 years, who sustained childhood traumatic brain injury (TBI) between birth and 5 years of age. METHODS: Thirty-three participants (17 adolescents with TBI and 16 TBI parent-proxies) were involved in the study which compared parent and adolescent ratings on the Sydney Psychosocial Reintegration Scale-Child form (SPRS-C) and the Pediatric Quality-of-Life Inventory (PedsQL). The questionnaires were administered through phone interviews. RESULTS: As hypothesized, parent-adolescent agreement was acceptable for psychosocial outcome (intra-class coefficient [ICC] of 0.844, p < 0.001), whereas discrepancies were found for ratings of QoL (ICC of 0.506, p = 0.092). CONCLUSION: The finding that parents and adolescents agree on psychosocial outcome is promising for those instances when the patient is unable to report; however, discrepancies regarding QoL suggest caution needs to be taken when interpreting parent-rated QoL data.
OBJECTIVE: This study investigated parent-adolescent agreement in long-term psychosocial and quality-of-life (QoL) outcomes. The sample comprised adolescents aged 15-18 years, who sustained childhood traumatic brain injury (TBI) between birth and 5 years of age. METHODS: Thirty-three participants (17 adolescents with TBI and 16 TBI parent-proxies) were involved in the study which compared parent and adolescent ratings on the Sydney Psychosocial Reintegration Scale-Child form (SPRS-C) and the Pediatric Quality-of-Life Inventory (PedsQL). The questionnaires were administered through phone interviews. RESULTS: As hypothesized, parent-adolescent agreement was acceptable for psychosocial outcome (intra-class coefficient [ICC] of 0.844, p < 0.001), whereas discrepancies were found for ratings of QoL (ICC of 0.506, p = 0.092). CONCLUSION: The finding that parents and adolescents agree on psychosocial outcome is promising for those instances when the patient is unable to report; however, discrepancies regarding QoL suggest caution needs to be taken when interpreting parent-rated QoL data.
Authors: Hilary Bertisch; Frederick P Rivara; Pamela A Kisala; Jin Wang; Keith Owen Yeates; Dennis Durbin; Mark R Zonfrillo; Michael J Bell; Nancy Temkin; David S Tulsky Journal: Qual Life Res Date: 2017-03-07 Impact factor: 4.147
Authors: Kelly R Wolfe; Erin D Bigler; Maureen Dennis; Cynthia A Gerhardt; Kenneth Rubin; H Gerry Taylor; Kathryn Vannatta; Keith Owen Yeates Journal: J Pediatr Psychol Date: 2014-07-30
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