Literature DB >> 22425491

Transition to adulthood for young men with Duchenne muscular dystrophy: research from the UK.

David Abbott1, John Carpenter, Kate Bushby.   

Abstract

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Mesh：

Year:  2012        PMID： 22425491     DOI： 10.1016/j.nmd.2012.02.004

Source DB:  PubMed          Journal:  Neuromuscul Disord        ISSN： 0960-8966            Impact factor:   4.296


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  14 in total

1.  Hospitalizations and emergency room visits for adolescents and young adults with muscular dystrophy living in South Carolina.

Authors:  Joshua R Mann; Julie A Royer; Suzanne Mcdermott; James W Hardin; Orgul Ozturk; Natalie Street
Journal:  Muscle Nerve       Date:  2015-08-14       Impact factor: 3.217

2.  Use of state administrative data sources to study adolescents and young adults with rare conditions.

Authors:  J A Royer; J W Hardin; S McDermott; L Ouyang; J R Mann; O D Ozturk; J Bolen
Journal:  J Gen Intern Med       Date:  2014-08       Impact factor: 5.128

3.  Achieving Life Milestones in Duchenne/Becker Muscular Dystrophy: A Retrospective Analysis.

Authors:  Andrew Donaldson; Debra Guntrum; Emma Ciafaloni; Jeffrey Statland
Journal:  Neurol Clin Pract       Date:  2021-08

Review 4.  Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Susan D Apkon; Angela Blackwell; Mary K Colvin; Linda Cripe; Adrienne R Herron; Annie Kennedy; Kathi Kinnett; James Naprawa; Garey Noritz; James Poysky; Natalie Street; Christina J Trout; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-02       Impact factor: 44.182

5.  Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy.

Authors:  Holly L Peay; Barbara T Do; Neil Khosla; Pangaja Paramsothy; Stephen W Erickson; Molly M Lamb; Nedra Whitehead; Deborah J Fox; Shree Pandya; Kathi Kinnett; Jodi Wolff; James F Howard
Journal:  J Neuromuscul Dis       Date:  2022

6.  Prevalence and distribution of late gadolinium enhancement in a large population of patients with Duchenne muscular dystrophy: effect of age and left ventricular systolic function.

Authors:  Kan N Hor; Michael D Taylor; Hussein R Al-Khalidi; Linda H Cripe; Subha V Raman; John L Jefferies; Robert O'Donnell; D Woodrow Benson; Wojciech Mazur
Journal:  J Cardiovasc Magn Reson       Date:  2013-12-21       Impact factor: 5.364

7.  Adult care for Duchenne muscular dystrophy in the UK.

Authors:  Sunil Rodger; Katherine L Woods; Catherine L Bladen; Angela Stringer; Julia Vry; Kathrin Gramsch; Janbernd Kirschner; Rachel Thompson; Katharine Bushby; Hanns Lochmüller
Journal:  J Neurol       Date:  2014-12-24       Impact factor: 4.849

8.  Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study.

Authors:  Bridget Johnston; Divya Jindal-Snape; Jan Pringle; Libby Gold; Jayne Grant; Raymond Dempsey; Ros Scott; Pat Carragher
Journal:  SAGE Open Med       Date:  2016-10-13

9.  The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases.

Authors:  Sunil Rodger; Hanns Lochmüller; Adrian Tassoni; Kathrin Gramsch; Kirsten König; Kate Bushby; Volker Straub; Rudolf Korinthenberg; Janbernd Kirschner
Journal:  Orphanet J Rare Dis       Date:  2013-10-23       Impact factor: 4.123

10.  The experiences of patients with Duchenne muscular dystrophy in facing and learning about their clinical conditions.

Authors:  Haruo Fujino; Yuko Iwata; Toshio Saito; Tsuyoshi Matsumura; Harutoshi Fujimura; Osamu Imura
Journal:  Int J Qual Stud Health Well-being       Date:  2016-10-05
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