Literature DB >> 22386913

Understanding patient perceptions following a psycho-educational intervention for psychogenic non-epileptic seizures.

Susan Baxter1, Rebecca Mayor, Wendy Baird, Richard Brown, Hannah Cock, Stephanie Howlett, Allan House, Josie Messina, Phil Smith, Markus Reuber.   

Abstract

This study formed part of an evaluation of a brief educational intervention for patients with psychogenic non-epileptic seizures (PNES). The sessions provide information, seizure control techniques and management planning. The qualitative component of the research reported here aimed to provide insight into the participants' perceptions following the intervention. Semi-structured interviews were conducted with twelve patients. Interviews were tape-recorded, transcribed and analyzed, using principles of thematic analysis. Six key themes were identified: getting answers; understanding the link with emotions; seeking a physiological explanation; doubting the diagnosis; the role of medication; and finding a way forward. The findings highlight considerable individual variation in response, with evidence of changed perceptions or enhanced understanding in some patients while others continued to seek answers or explanations about the cause of their seizures. There were no clear links between reported improved understanding or acceptance of the diagnosis and a perceived improvement in the condition.
Copyright © 2011 Elsevier Inc. All rights reserved.

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Year:  2012        PMID: 22386913     DOI: 10.1016/j.yebeh.2011.12.002

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  5 in total

1.  Treatment of functional motor disorders.

Authors:  Jeannette M Gelauff; Yasmine E M Dreissen; Marina A J Tijssen; Jon Stone
Journal:  Curr Treat Options Neurol       Date:  2014-04       Impact factor: 3.598

2.  Postdiagnosis neurological care for patients with psychogenic nonepileptic spells (PNES).

Authors:  Chloe E Hill; Hannah Schwartz; Nabila Dahodwala; Brian Litt; Kathryn A Davis
Journal:  Epilepsy Behav       Date:  2017-07-17       Impact factor: 2.937

3.  Simultaneous nonepileptic spells and nonorganic hearing loss: A case of comorbid psychogenic symptoms.

Authors:  Reza Sadjadi; Mark Quigg
Journal:  Epilepsy Behav Case Rep       Date:  2014-03-29

4.  The experience of trial participation, treatment approaches and perceptions of change among participants with dissociative seizures within the CODES randomized controlled trial: A qualitative study.

Authors:  Julie Read; Harriet Jordan; Iain Perdue; James Purnell; Joanna Murray; Trudie Chalder; Markus Reuber; Jon Stone; Laura H Goldstein
Journal:  Epilepsy Behav       Date:  2020-07-05       Impact factor: 2.937

5.  Functional seizures: The patient's perspective of a diagnostic and treatment odyssey.

Authors:  Heather J Andrini; Sydni L Au Hoy; Ashley M Okhovat; Juliana Lockman; Gregory R Goldsmith
Journal:  Epilepsy Behav Rep       Date:  2021-11-26
  5 in total

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