Literature DB >> 22384989

Legitimising and rationalising in talk about satisfaction with formal healthcare among bereaved family members.

Laura M Funk1, Kelli I Stajduhar, S Robin Cohen, Daren K Heyland, Allison Williams.   

Abstract

While there is a fair amount of knowledge regarding substantive features of end of life care that family members desire and appreciate, we lack full understanding of the process whereby family members formulate care evaluations. In this article we draw on an analysis of interview data from 24 bereaved family members to explicate how they interpret their experiences and formulate evaluations of end of life care services. Most participants wove between expressing and legitimising dissatisfaction, and qualifying or diffusing it. This occurred through processes of comparisons against prior care experiences and expectations, personalising (drawing on personal situations and knowledge), collectivising (drawing on conversations with and observations of others) and attempting to understand causes for their negative care experiences and to attribute responsibility. The findings suggest that dissatisfaction might be diffused even where care is experienced negatively, primarily through the acknowledgement of mitigating circumstances. To a lesser extent, some participants attributed responsibility to the 'system' (policy and decision-makers) and individual staff members. The findings are discussed in relation to the theoretical understanding of satisfaction and evaluation processes and how satisfaction data might inform improvements to care quality.
© 2012 The Authors. Sociology of Health & Illness © 2012 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd.

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Year:  2012        PMID: 22384989     DOI: 10.1111/j.1467-9566.2011.01457.x

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  3 in total

1.  Conversations on Cancer Chemotherapy Cessation in Patients With Advanced Cancer: Qualitative Findings From a Multi-Institutional Study.

Authors:  Jeremiah Stout; Ashok Kumbamu; Jon Tilburt; Cara Fernandez; Gail Geller; Barbara Koenig; Heinz-Josep Lenz; Aminah Jatoi
Journal:  Am J Hosp Palliat Care       Date:  2020-06-04       Impact factor: 2.500

2.  Bereaved family members' perceptions of the quality of end-of-life care across four types of inpatient care settings.

Authors:  Kelli Stajduhar; Richard Sawatzky; S Robin Cohen; Daren K Heyland; Diane Allan; Darcee Bidgood; Leah Norgrove; Anne M Gadermann
Journal:  BMC Palliat Care       Date:  2017-11-25       Impact factor: 3.234

3.  'If there were doctors who could understand our problems, I would already be better': dissatisfactory health care and marginalisation in superdiverse neighbourhoods.

Authors:  Hannah Bradby; Antje Lindenmeyer; Jenny Phillimore; Beatriz Padilla; Tilman Brand
Journal:  Sociol Health Illn       Date:  2020-02-04
  3 in total

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