BACKGROUND: Advance care planning (ACP) is an important element of high-quality care in nursing homes, especially for residents having dementia who are often incompetent in decision-making toward the end of life. The aim of this study was describe the prevalence of documented ACP among nursing home residents with dementia in Flanders, Belgium, and associated clinical characteristics and outcomes. METHODS: All 594 nursing homes in Flanders were asked to participate in a retrospective cross-sectional postmortem survey in 2006. Participating homes identified all residents who had died over the last two months. A structured questionnaire was mailed to the nurses closely involved in the deceased resident's care regarding the diagnosis of dementia and documented care planning, i.e. advance patient directives, authorization of a legal representative, and general practitioners' treatment orders (GP orders). RESULTS: In 345 nursing homes (58% response rate), nurses identified 764 deceased residents with dementia of whom 62% had some type of documented care plan, i.e. advance patient directives in 3%, a legal representative in 8%, and GP orders in 59%. Multivariate logistic regression showed that the presence of GP orders was positively associated with receiving specialist palliative care in the nursing home (OR 3.10; CI, 2.07-4.65). Chances of dying in a hospital were lower if there was a GP order (OR 0.38; CI, 0.21-0.70). CONCLUSIONS: Whereas GP orders are relatively common among residents with dementia, advance patient directives and a legal representative are relatively uncommon. Nursing home residents receiving palliative care are more likely to have a GP order. GP orders may affect place of death.
BACKGROUND: Advance care planning (ACP) is an important element of high-quality care in nursing homes, especially for residents having dementia who are often incompetent in decision-making toward the end of life. The aim of this study was describe the prevalence of documented ACP among nursing home residents with dementia in Flanders, Belgium, and associated clinical characteristics and outcomes. METHODS: All 594 nursing homes in Flanders were asked to participate in a retrospective cross-sectional postmortem survey in 2006. Participating homes identified all residents who had died over the last two months. A structured questionnaire was mailed to the nurses closely involved in the deceased resident's care regarding the diagnosis of dementia and documented care planning, i.e. advance patient directives, authorization of a legal representative, and general practitioners' treatment orders (GP orders). RESULTS: In 345 nursing homes (58% response rate), nurses identified 764 deceased residents with dementia of whom 62% had some type of documented care plan, i.e. advance patient directives in 3%, a legal representative in 8%, and GP orders in 59%. Multivariate logistic regression showed that the presence of GP orders was positively associated with receiving specialist palliative care in the nursing home (OR 3.10; CI, 2.07-4.65). Chances of dying in a hospital were lower if there was a GP order (OR 0.38; CI, 0.21-0.70). CONCLUSIONS: Whereas GP orders are relatively common among residents with dementia, advance patient directives and a legal representative are relatively uncommon. Nursing home residents receiving palliative care are more likely to have a GP order. GP orders may affect place of death.
Authors: Katrien Moens; Dirk Houttekier; Lieve Van den Block; Richard Harding; Lucas Morin; Stefano Marchetti; Agnes Csikos; Martin Loucka; Wayne A Naylor; Donna M Wilson; Joan Teno; Marylou Cardenas-Turanzas; YongJoo Rhee; Francisco Javier Garcia-Leon; Luc Deliens; Joachim Cohen Journal: BMC Palliat Care Date: 2015-05-20 Impact factor: 3.234
Authors: An Vandervoort; Dirk Houttekier; Robert Vander Stichele; Jenny T van der Steen; Lieve Van den Block Journal: PLoS One Date: 2014-03-10 Impact factor: 3.240
Authors: J Gilissen; L Pivodic; C Gastmans; R Vander Stichele; L Deliens; E Breuer; L Van den Block Journal: BMC Geriatr Date: 2018-02-14 Impact factor: 3.921
Authors: Ruth Piers; Gwenda Albers; Joni Gilissen; Jan De Lepeleire; Jan Steyaert; Wouter Van Mechelen; Els Steeman; Let Dillen; Paul Vanden Berghe; Lieve Van den Block Journal: BMC Palliat Care Date: 2018-06-21 Impact factor: 3.234