Literature DB >> 22344588

Reliability of the Pediatric Quality of Life Inventory - Healthcare Satisfaction Generic Module 3.0 version for the assessment of the quality of care of children with chronic diseases.

Fernanda M de Souza1, Juliana Molina, Maria Teresa R A Terreri, Maria Odete E Hilário, Claudio A Len.   

Abstract

OBJECTIVE: To translate to Brazilian Portuguese and to evaluate the reliability of the Healthcare Satisfaction (HS) Generic Module version 3.0 of the PedsQL inventory for the Brazilian culture.
METHOD: The methods recommended by the authors of the original version of the questionnaire were used: 1) translation by bilingual experts; 2) back translation into English and evaluation by the authors of the original version; 3) a pilot study including 10 parents (cognitive interview); and 4) evaluation of the measurement properties of the questionnaire. The questionnaire was administered to 60 parents of children and adolescents with chronic diseases in key units of the Department of Pediatrics.
RESULTS: Cronbach's alpha ranged from 0.57 to 0.78 for all domains (information, family inclusion, communication, technical skills, emotional needs and overall satisfaction), which confirmed good internal consistency. Test-retest reproducibility was evaluated using 20% of the sample (Spearman correlation coefficient = 0.909). The satisfaction score was good in all areas (> 4.3 points) except in the emotional needs domain.
CONCLUSION: The Brazilian version of the HS-PedsQL is a valid and reliable tool to measure the overall satisfaction of parents and caregivers with the treatment of their children.

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Year:  2012        PMID: 22344588     DOI: 10.2223/JPED.2152

Source DB:  PubMed          Journal:  J Pediatr (Rio J)        ISSN: 0021-7557            Impact factor:   2.197


  5 in total

Review 1.  Importance of adherence in the outcome of juvenile idiopathic arthritis.

Authors:  Claudio A Len; Vanessa B Miotto e Silva; Maria Teresa R A Terreri
Journal:  Curr Rheumatol Rep       Date:  2014-04       Impact factor: 4.592

2.  Fatigue in children with juvenile idiopathic arthritis: reliability of the "Pediatric Quality of Life Inventory-Multidimensional Fatigue Scale".

Authors:  Luciana Tudech S P Paulo; Claudio A Len; Maria Odete E Hilario; Soraya A Pedroso; Maria Sylvia S Vitalle; Maria Teresa Terreri
Journal:  Rheumatol Int       Date:  2014-06-19       Impact factor: 2.631

3.  The Chinese version of the Pediatric Quality Of Life Inventory™ (PedsQL™) healthcare satisfaction generic module (version 3.0): psychometric evaluation.

Authors:  Jialing Li; Lianxiong Yuan; Yu Wu; Yunzhu Luan; Yuantao Hao
Journal:  Health Qual Life Outcomes       Date:  2013-07-05       Impact factor: 3.186

4.  Psychological characteristics of caregivers of pediatric patients with chronic rheumatic disease in relation to treatment adherence.

Authors:  Livia de Freitas Keppeke; Juliana Molina; Vanessa Bugni Miotto E Silva; Maria Teresa de Sande E Lemos Ramos Ascensão Terreri; Gerson Dierley Keppeke; Teresa Helena Schoen; Claudio Arnaldo Len
Journal:  Pediatr Rheumatol Online J       Date:  2018-10-12       Impact factor: 3.054

5.  Evaluation of a simple tool to assess the results of Ponseti treatment for use by clubfoot therapists: a diagnostic accuracy study.

Authors:  Tracey Smythe; Debra Mudariki; Maxman Gova; Allen Foster; Christopher Lavy
Journal:  J Foot Ankle Res       Date:  2019-03-04       Impact factor: 2.303

  5 in total

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