Literature DB >> 22314708

Are family-oriented interventions in Portuguese genetics services a remote possibility? Professionals' views on a multifamily intervention for cancer susceptibility families.

Alvaro Mendes1, Milena Paneque, Liliana Sousa.   

Abstract

This article examines genetics healthcare professionals' opinions about a multifamily psychoeducational programme for hereditary cancer susceptibility families, implemented at a Portuguese genetics service. Their views on how a family-oriented approach is envisioned to be incorporated in Portuguese genetic counselling services are also reported. Six focus groups and three individual interviews were undertaken comprising 30 professionals working in the provision of genetic counselling and genetic counsellor trainees. Participants were given a page-summary describing the intervention and asked to comment the strengths and limitations of the multifamily intervention. All interviews were fully transcribed and analysed using the constant comparison method. The qualitative analysis generated data comprising four thematic categories in relation to the professionals' views: (a) usefulness of the programme; (b) programme's methodological and practical obstacles; (c) genetics services constraints; and (d) suggestions for improving the programme and further family-oriented interventions. We reflect on the reported views examining the intervention, and on how current constraints of genetic services limit the provision of psychosocial support for cancer susceptibility families. The implications of these findings regarding the purpose of genetic counselling are discussed. Results may sensitise stakeholders and policy makers for the need to deliver family-based services in cancer genetic counselling, with adequate planning and collaborative involvement of different professionals.

Entities:  

Year:  2012        PMID: 22314708      PMCID: PMC3461231          DOI: 10.1007/s12687-012-0079-z

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  26 in total

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4.  Using a community of practice to develop standards of practice and education for genetic counsellors in Europe.

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Authors:  Peter Steinglass; Jamie S Ostroff; Abbe Stahl Steinglass
Journal:  Fam Process       Date:  2011-09

Review 6.  Genetic detection: the need for psychosocial support in modern cancer prevention.

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Journal:  Support Care Cancer       Date:  1997-11       Impact factor: 3.603

7.  Systemically-Based Psychotherapeutic Techniques in Genetic Counseling.

Authors:  D L Eunpu
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8.  Assessment of clinical practices among cancer genetic counselors.

Authors:  Deborah Wham; Thuy Vu; Gayun Chan-Smutko; Christine Kobelka; Diana Urbauer; Brandie Heald
Journal:  Fam Cancer       Date:  2010-09       Impact factor: 2.375

9.  Family issues in a psychoeducation group for women with a BRCA mutation.

Authors:  J Speice; S H McDaniel; P T Rowley; S Loader
Journal:  Clin Genet       Date:  2002-08       Impact factor: 4.438

10.  A randomised controlled trial of a psychoeducational intervention for women at increased risk of breast cancer.

Authors:  S Appleton; M Watson; R Rush; S Garcia-Minaur; M Porteous; J Campbell; E Anderson; A Cull
Journal:  Br J Cancer       Date:  2004-01-12       Impact factor: 7.640

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  2 in total

1.  Genetic Counseling in Portugal: Education, Practice and a Developing Profession.

Authors:  Milena Paneque; Álvaro Mendes; Jorge Saraiva; Jorge Sequeiros
Journal:  J Genet Couns       Date:  2015-03-03       Impact factor: 2.537

2.  Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups.

Authors:  Ivan Eisler; Frances Flinter; Jo Grey; Suzanne Hutchison; Carole Jackson; Louise Longworth; Rhona MacLeod; Marion McAllister; Alison Metcalfe; Christine Patch; Buddug Cope; Glenn Robert; Emma Rowland; Fiona Ulph
Journal:  J Genet Couns       Date:  2016-10-10       Impact factor: 2.537

  2 in total

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