Literature DB >> 22278387

Patient empowerment as a component of health system reforms: rights, benefits and vested interests.

Cinzia Colombo1, Lorenzo Moja, Marien Gonzalez-Lorenzo, Alessandro Liberati, Paola Mosconi.   

Abstract

Different strategies have been developed across countries to foster citizens' and patients' involvement, from health policies to patients' active participation in decisions regarding their health. The spectrum varies from systems where patients lead the reform of health care services, to others where a paternalistic approach still limits patients' autonomy in decision-making. This paper describes: (1) different interventions for involving patients; (2) experiences to promote consumer evidence-based advocacy; and (3) barriers to consumer involvement in health system reforms, including vested interests in patients' associations. Citizens' involvement in health systems can vary substantially, but is gaining increasing weight.

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Year:  2012        PMID: 22278387     DOI: 10.1007/s11739-012-0757-1

Source DB:  PubMed          Journal:  Intern Emerg Med        ISSN: 1828-0447            Impact factor:   3.397


  28 in total

1.  The James Lind Alliance: tackling research mismatches.

Authors:  Sophie Petit-Zeman; Lester Firkins; John W Scadding
Journal:  Lancet       Date:  2010-08-28       Impact factor: 79.321

2.  Press coverage of hormone replacement therapy and menopause.

Authors:  Cinzia Colombo; Paola Mosconi; Maria Grazia Buratti; Alessandro Liberati; Serena Donati; Alfonso Mele; Roberto Satolli
Journal:  Eur J Obstet Gynecol Reprod Biol       Date:  2010-08-11       Impact factor: 2.435

Review 3.  Decision aids for patients facing health treatment decisions in Spain: preliminary results.

Authors:  Lilisbeth Perestelo-Perez; Jeanette Perez-Ramos; Marien Gonzalez-Lorenzo; Amado Rivero-Santana; Pedro Serrano-Aguilar
Journal:  Patient Educ Couns       Date:  2010-07-02

4.  Effectiveness of strategies for informing, educating, and involving patients.

Authors:  Angela Coulter; Jo Ellins
Journal:  BMJ       Date:  2007-07-07

5.  Should patient groups accept money from drug companies? No.

Authors:  Barbara Mintzes
Journal:  BMJ       Date:  2007-05-05

6.  Shared decision making in Spain: current state and future perspectives.

Authors:  Lilisbeth Perestelo-Perez; Amado Rivero-Santana; Jeanette Perez-Ramos; Marien Gonzalez-Lorenzo; Javier Gracia-San Roman; Pedro Serrano-Aguilar
Journal:  Z Evid Fortbild Qual Gesundhwes       Date:  2011-04-30

7.  Evolving the multiple roles of 'patients' in health-care research: reflections after involvement in a trial of shared decision-making.

Authors:  Hazel Thornton; Adrian Edwards; Glyn Elwyn
Journal:  Health Expect       Date:  2003-09       Impact factor: 3.377

8.  Patient perspective on outcomes in rheumatology -- a position paper for OMERACT 9.

Authors:  John R Kirwan; Stanton Newman; Peter S Tugwell; George A Wells
Journal:  J Rheumatol       Date:  2009-09       Impact factor: 4.666

9.  Advertising and disclosure of funding on patient organisation websites: a cross-sectional survey.

Authors:  Douglas E Ball; Klara Tisocki; Andrew Herxheimer
Journal:  BMC Public Health       Date:  2006-08-03       Impact factor: 3.295

10.  Informing women about hormone replacement therapy: the consensus conference statement.

Authors:  Paola Mosconi; Serena Donati; Cinzia Colombo; Alfonso Mele; Alessandro Liberati; Roberto Satolli
Journal:  BMC Womens Health       Date:  2009-05-29       Impact factor: 2.809

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  9 in total

1.  Patient empowerment in Europe: is no further research needed?

Authors:  Livio Garattini; Anna Padula
Journal:  Eur J Health Econ       Date:  2018-06

Review 2.  How technology is empowering patients? A literature review.

Authors:  Jorge Calvillo; Isabel Román; Laura M Roa
Journal:  Health Expect       Date:  2013-05-28       Impact factor: 3.377

3.  Building Bridges for Innovation in Ageing: Synergies between Action Groups of the EIP on AHA.

Authors:  J Bousquet; M Bewick; A Cano; P Eklund; G Fico; N Goswami; N A Guldemond; D Henderson; M J Hinkema; G Liotta; A Mair; W Molloy; A Monaco; I Monsonis-Paya; A Nizinska; H Papadopoulos; A Pavlickova; S Pecorelli; A Prados-Torres; R E Roller-Wirnsberger; D Somekh; C Vera-Muñoz; F Visser; J Farrell; J Malva; K Andersen Ranberg; T Camuzat; A M Carriazo; G Crooks; Z Gutter; G Iaccarino; E Manuel de Keenoy; G Moda; L Rodriguez-Mañas; T Vontetsianos; C Abreu; J Alonso; C Alonso-Bouzon; J Ankri; M T Arredondo; F Avolio; A Bedbrook; A Z Białoszewski; H Blain; R Bourret; M F Cabrera-Umpierrez; A Catala; R O'Caoimh; M Cesari; N H Chavannes; J Correia-da-Sousa; T Dedeu; M Ferrando; M Ferri; W J Fokkens; F Garcia-Lizana; O Guérin; P W Hellings; T Haahtela; M Illario; M C Inzerilli; K C Lodrup Carlsen; P Kardas; T Keil; M Maggio; A Mendez-Zorrilla; E Menditto; J Mercier; J P Michel; R Murray; M Nogues; I O'Byrne-Maguire; D Pappa; A S Parent; M Pastorino; C Robalo-Cordeiro; B Samolinski; P Siciliano; A M Teixeira; S I Tsartara; A Valiulis; O Vandenplas; T Vasankari; B Vellas; M Vollenbroek-Hutten; M Wickman; A Yorgancioglu; T Zuberbier; M Barbagallo; G W Canonica; L Klimek; S Maggi; W Aberer; C Akdis; I M Adcock; I Agache; C Albera; F Alonso-Trujillo; M Angel Guarcia; I Annesi-Maesano; J Apostolo; S H Arshad; V Attalin; A Avignon; C Bachert; I Baroni; E Bel; M Benson; C Bescos; F Blasi; C Barbara; K C Bergmann; P L Bernard; S Bonini; P J Bousquet; B Branchini; C E Brightling; V Bruguière; C Bunu; A Bush; D P Caimmi; M A Calderon; G Canovas; V Cardona; K H Carlsen; A Cesario; E Chkhartishvili; R Chiron; T Chivato; K F Chung; M d'Angelantonio; G De Carlo; D Cholley; F Chorin; B Combe; B Compas; D J Costa; E Costa; O Coste; A-L Coupet; G Crepaldi; A Custovic; R Dahl; S E Dahlen; P Demoly; P Devillier; A Didier; A T Dinh-Xuan; R Djukanovic; D Dokic; G Du Toit; R Dubakiene; A Dupeyron; R Emuzyte; A Fiocchi; A Wagner; M Fletcher; J Fonseca; B Fougère; A Gamkrelidze; G Garces; J Garcia-Aymeric; B Garcia-Zapirain; B Gemicioğlu; C Gouder; B Hellquist-Dahl; I Hermosilla-Gimeno; D Héve; C Holland; M Humbert; M Hyland; S L Johnston; J Just; M Jutel; I P Kaidashev; M Khaitov; O Kalayci; A F Kalyoncu; W Keijser; H Kerstjens; J Knezović; M Kowalski; G H Koppelman; T Kotska; M Kovac; I Kull; P Kuna; V Kvedariene; V Lepore; W MacNee; M Maggio; A Magnan; I Majer; P Manning; M Marcucci; T Marti; M Masoli; E Melen; N Miculinic; F Mihaltan; B Milenkovic; J Millot-Keurinck; H Mlinarić; I Momas; S Montefort; M Morais-Almeida; T Moreno-Casbas; R Mösges; J Mullol; R Nadif; M Nalin; E Navarro-Pardo; K Nekam; G Ninot; D Paccard; S Pais; E Palummeri; P Panzner; N K Papadopoulos; C Papanikolaou; G Passalacqua; E Pastor; M Perrot; D Plavec; T A Popov; D S Postma; D Price; N Raffort; J C Reuzeau; J M Robine; F Rodenas; F Robusto; N Roche; A Romano; V Romano; J Rosado-Pinto; F Roubille; F Ruiz; D Ryan; T Salcedo; P Schmid-Grendelmeier; H Schulz; H J Schunemann; E Serrano; A Sheikh; M Shields; N Siafakas; N Scichilone; P Siciliano; I Skrindo; H A Smit; S Sourdet; E Sousa-Costa; O Spranger; T Sooronbaev; V Sruk; P J Sterk; A Todo-Bom; J Touchon; D Tramontano; M Triggiani; S I Tsartara; A L Valero; E Valovirta; E van Ganse; M van Hage; M van den Berge; O Vandenplas; M T Ventura; I Vergara; G Vezzani; D Vidal; G Viegi; M Wagemann; B Whalley; M Wickman; N Wilson; P K Yiallouros; M Žagar; A Zaidi; M Zidarn; E J Hoogerwerf; J Usero; R Zuffada; A Senn; B de Oliveira-Alves
Journal:  J Nutr Health Aging       Date:  2017       Impact factor: 4.075

4.  Web-based collaboration in individual care planning challenges the user and the provider roles - toward a power transition in caring relationships.

Authors:  Jorunn Bjerkan; Solfrid Vatne; Anne Hollingen
Journal:  J Multidiscip Healthc       Date:  2014-12-08

5.  The empowerment of elderly patients with chronic obstructive pulmonary disease: Managing life with the disease.

Authors:  Zahra Fotokian; Farahnaz Mohammadi Shahboulaghi; Masoud Fallahi-Khoshknab; Ali Pourhabib
Journal:  PLoS One       Date:  2017-04-03       Impact factor: 3.240

6.  Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups.

Authors:  Cinzia Colombo; Anna Roberto; Karmela Krleza-Jeric; Elena Parmelli; Rita Banzi
Journal:  BMJ Open       Date:  2019-02-19       Impact factor: 2.692

7.  Making patient centered care a reality: a survey of patient educational programs in Italian Cancer Research and Care Institutes.

Authors:  C Cipolat Mis; I Truccolo; V Ravaioli; S Cocchi; L Gangeri; P Mosconi; C Drace; L Pomicino; A Paradiso; P De Paoli
Journal:  BMC Health Serv Res       Date:  2015-07-30       Impact factor: 2.655

8.  Empowering patients through eHealth: a case report of a pan-European project.

Authors:  Emanuele Lettieri; Lia P Fumagalli; Giovanni Radaelli; Paolo Bertele'; Jess Vogt; Reinhard Hammerschmidt; Juan L Lara; Ana Carriazo; Cristina Masella
Journal:  BMC Health Serv Res       Date:  2015-08-05       Impact factor: 2.655

9.  Disseminating clinical study results to trial participants in Ethiopia: insights and lessons learned.

Authors:  Tamiru S Degaga; Sophie Weston; Tedla T Tego; Dagimawie T Abate; Ashenafi Aseffa; Adugna Wayessa; Ric N Price; Asrat Hailu; Kamala Thriemer
Journal:  Malar J       Date:  2020-06-08       Impact factor: 2.979

  9 in total

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