Literature DB >> 22278007

[Palliative care for patients with dementia].

T Zieschang1, P Oster, M Pfisterer, N Schneider.   

Abstract

Patients with dementia are an important target group for palliative care since particularly in advanced stages and at the end of life they often have complex health care and psychosocial needs. However, people with dementia have inappropriate access to palliative care. So far, palliative care focuses on cancer patients. Among other reasons, this is due to the different illness trajectories: while in cancer a relatively clear terminal phase is typical, in dementia functional decline is gradual without a clear terminal phase, making advanced care planning more difficult. Good communication among health care providers and with the patient and his/her family is essential to avoid unnecessary or even harmful interventions at the end of life (e.g., inserting a percutaneous endoscopic gastrostomy, PEG). To maintain the patient's autonomy and to deliver health care according to the individual preferences, it is important to appropriately inform the patient and the family at an early stage about the disease and problems that may occur. In this context, advanced directives can be helpful.

Entities:  

Mesh:

Year:  2012        PMID: 22278007     DOI: 10.1007/s00391-011-0270-6

Source DB:  PubMed          Journal:  Z Gerontol Geriatr        ISSN: 0948-6704            Impact factor:   1.281


  21 in total

Review 1.  Palliative Care: the World Health Organization's global perspective.

Authors:  Cecilia Sepúlveda; Amanda Marlin; Tokuo Yoshida; Andreas Ullrich
Journal:  J Pain Symptom Manage       Date:  2002-08       Impact factor: 3.612

2.  Illness trajectories and palliative care.

Authors:  Scott A Murray; Marilyn Kendall; Kirsty Boyd; Aziz Sheikh
Journal:  BMJ       Date:  2005-04-30

3.  Trajectories of disability in the last year of life.

Authors:  Thomas M Gill; Evelyne A Gahbauer; Ling Han; Heather G Allore
Journal:  N Engl J Med       Date:  2010-04-01       Impact factor: 91.245

4.  Gastrostomies in dementia: bad practice or bad evidence?

Authors:  Claud Regnard; Paula Leslie; Hannah Crawford; Dorothy Matthews; Lynn Gibson
Journal:  Age Ageing       Date:  2010-02-22       Impact factor: 10.668

5.  Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention.

Authors:  Elizabeth L Sampson; Louise Jones; Ingela C V Thuné-Boyle; Riitta Kukkastenvehmas; Michael King; Baptiste Leurent; Adrian Tookman; Martin R Blanchard
Journal:  Palliat Med       Date:  2011-01-12       Impact factor: 4.762

6.  Issues in end-of-life care: patient, caregiver, and clinician perceptions.

Authors:  Stuart J Farber; Thomas R Egnew; Janet L Herman-Bertsch; Thomas R Taylor; Gregory E Guldin
Journal:  J Palliat Med       Date:  2003-02       Impact factor: 2.947

Review 7.  [On disclosing a diagnosis of dementia].

Authors:  G Lämmler; E Stechl; E Steinhagen-Thiessen
Journal:  Z Gerontol Geriatr       Date:  2007-04       Impact factor: 1.281

8.  The clinical course of advanced dementia.

Authors:  Susan L Mitchell; Joan M Teno; Dan K Kiely; Michele L Shaffer; Richard N Jones; Holly G Prigerson; Ladislav Volicer; Jane L Givens; Mary Beth Hamel
Journal:  N Engl J Med       Date:  2009-10-15       Impact factor: 91.245

9.  Eating difficulties in patients with probable dementia of the Alzheimer type.

Authors:  L Volicer; B Seltzer; Y Rheaume; J Karner; M Glennon; M E Riley; P Crino
Journal:  J Geriatr Psychiatry Neurol       Date:  1989 Oct-Dec       Impact factor: 2.680

10.  Efficacy of treating pain to reduce behavioural disturbances in residents of nursing homes with dementia: cluster randomised clinical trial.

Authors:  Bettina S Husebo; Clive Ballard; Reidun Sandvik; Odd Bjarte Nilsen; Dag Aarsland
Journal:  BMJ       Date:  2011-07-15
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