Literature DB >> 22271750

The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer.

Vivian Engelen1, Myra van Zwieten, Hendrik Koopman, Symone Detmar, Huib Caron, Paul Brons, Maarten Egeler, Gert-Jan Kaspers, Martha Grootenhuis.   

Abstract

BACKGROUND: This study investigates the effect of using patient reported outcomes (PROs) about health-related quality of life (HRQOL) in clinical practice on the type and amount of psychosocial topics discussed during a paediatric oncology consultation. PROCEDURE: Children (N = 193) with cancer participated in a sequential cohort intervention study, with a control (no PRO was used) and intervention group (a PRO was used). For each child three consecutive consultations with the paediatric oncologist were audio recorded in order to assess the discussed psychosocial topics. One third of the audio recordings were qualitatively analysed.
RESULTS: The type of the discussed psychosocial topics in the control and intervention group did not differ from each other. However, the discussion of psychosocial topics increased in the intervention group compared to the control group. In both groups, topics within the social domain occurred most frequently and topics regarding the emotional domain had the lowest incidence.
CONCLUSIONS: PROs do not change the psychosocial content of communication. Paediatric oncologists already address psychosocial issues during the consultation, regardless of the use of a PRO. However, with a PRO available they address these issues more systematically and more often.
Copyright © 2012 Wiley Periodicals, Inc.

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Mesh:

Year:  2012        PMID: 22271750     DOI: 10.1002/pbc.24089

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  5 in total

1.  Documentation of Psychosocial Distress and Its Antecedents in Children with Rare or Life-Limiting Chronic Conditions.

Authors:  Sarah R McCarthy; Elizabeth H Golembiewski; Derek L Gravholt; Jennifer E Clark; Jeannie Clark; Caree Fischer; Hannah Mulholland; Kristina Babcock; Victor M Montori; Amie Jones
Journal:  Children (Basel)       Date:  2022-05-05

2.  Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors.

Authors:  Nuray A McNeill; Wijnanda A Kors; Machteld I Bosscha; Jennifer van Dijk; Armida W M Fabius; Ton Houffelaar; Irma M Verdonck-de Leeuw; Annette C Moll
Journal:  J Cancer Surviv       Date:  2017-09-25       Impact factor: 4.442

3.  From the Child's Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care.

Authors:  Katharine E Brock; Joanne Wolfe; Christina Ullrich
Journal:  Children (Basel)       Date:  2018-03-28

4.  Randomized comparative study of child and caregiver responses to three software functions added to the Japanese version of the electronic Pediatric Quality of Life Inventory (ePedsQL) questionnaire.

Authors:  Iori Sato; Mariko Sakka; Takafumi Soejima; Sachiko Kita; Kiyoko Kamibeppu
Journal:  J Patient Rep Outcomes       Date:  2020-06-23

5.  Systematic review: measurement properties of patient-reported outcome measures evaluated with childhood brain tumor survivors or other acquired brain injury.

Authors:  Kim S Bull; Samantha Hornsey; Colin R Kennedy; Anne-Sophie E Darlington; Martha A Grootenhuis; Darren Hargrave; Christina Liossi; Jonathan P Shepherd; David A Walker; Christopher Morris
Journal:  Neurooncol Pract       Date:  2019-12-08
  5 in total

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