Literature DB >> 22267385

PPI, paradoxes and Plato: who's sailing the ship?

Jonathan Ives1, Sarah Damery, Sabi Redwod.   

Abstract

Over the last decade, patient and public involvement (PPI) has become a requisite in applied health research. Some funding bodies demand explicit evidence of PPI, while others have made a commitment to developing PPI in the projects they fund. Despite being commonplace, there remains a dearth of engagement with the ethical and theoretical underpinnings of PPI processes and practices. More specifically, while there is a small (but growing) body of literature examining the effectiveness and impact of PPI, there has been relatively little reflection on whether the concept/practice of PPI is internally coherent. Here, the authors unpick a 'paradox' within PPI, which highlights a tension between its moral and pragmatic motivations and its implementation. The authors argue that this 'professionalisation paradox' means we need to rethink the practice, and purpose, of PPI in research.

Entities:  

Mesh:

Year:  2012        PMID: 22267385     DOI: 10.1136/medethics-2011-100150

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  64 in total

Review 1.  A descriptive review on methods to prioritize outcomes in a health care context.

Authors:  Inger M Janssen; Ansgar Gerhardus; Milly A Schröer-Günther; Fülöp Scheibler
Journal:  Health Expect       Date:  2014-08-25       Impact factor: 3.377

2.  Exploring Ethical Issues Related to Patient Engagement in Healthcare: Patient, Clinician and Researcher's Perspectives.

Authors:  Marjorie Montreuil; Joé T Martineau; Eric Racine
Journal:  J Bioeth Inq       Date:  2019-02-11       Impact factor: 1.352

Review 3.  The importance of measuring the impact of patient-oriented research.

Authors:  Diane Aubin; Marilynne Hebert; Dean Eurich
Journal:  CMAJ       Date:  2019-08-06       Impact factor: 8.262

4.  An exercise intervention for people with serious mental illness: Findings from a qualitative data analysis using participatory theme elicitation.

Authors:  Jade Yap; Claire McCartan; Gavin Davidson; Chris White; Liam Bradley; Paul Webb; Jennifer Badham; Gavin Breslin; Paul Best
Journal:  Health Expect       Date:  2020-10-09       Impact factor: 3.377

Review 5.  Participatory research in health promotion: a critical review and illustration of rationales.

Authors:  Janneke Harting; Kasper Kruithof; Lotte Ruijter; Karien Stronks
Journal:  Health Promot Int       Date:  2022-06-23       Impact factor: 3.734

6.  Patients as research partners; how to value their perceptions, contribution and labor?

Authors:  Elise Smith; Jean-Chrisophe Bélisle-Pipon; David Resnik
Journal:  Citiz Sci       Date:  2019-03-08

7.  Public values and plurality in health priority setting: What to do when people disagree and why we should care about reasons as well as choices.

Authors:  Rachel Baker; Helen Mason; Neil McHugh; Cam Donaldson
Journal:  Soc Sci Med       Date:  2021-04-02       Impact factor: 4.634

8.  A little more conversation please? Qualitative study of researchers' and patients' interview accounts of training for patient and public involvement in clinical trials.

Authors:  Louise Dudley; Carrol Gamble; Alison Allam; Philip Bell; Deborah Buck; Heather Goodare; Bec Hanley; Jennifer Preston; Alison Walker; Paula Williamson; Bridget Young
Journal:  Trials       Date:  2015-04-27       Impact factor: 2.279

9.  Formalising the induction of patient and public involvement contributors on trial oversight committees.

Authors:  Emily C Pickering; Bec Hanley; Philip Bell; Jacqui Gath; Patrick Hanlon; Robert Oldroyd; Richard Stephens; Conor D Tweed
Journal:  Res Involv Engagem       Date:  2021-06-17

10.  Using the framework method for the analysis of qualitative data in multi-disciplinary health research.

Authors:  Nicola K Gale; Gemma Heath; Elaine Cameron; Sabina Rashid; Sabi Redwood
Journal:  BMC Med Res Methodol       Date:  2013-09-18       Impact factor: 4.615

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