Emília de Faria Oliveira1, Suelly Cecilia Olivan Limongi. 1. Speech-Language Pathology Laboratory in Syndromes and Sensorimotor Deficits, Department of Physical Therapy, Communication Sciences, and Occupational Therapy, School of Medicine, Universidade de São Paulo, São Paulo, SP, Brazil.
Abstract
PURPOSE: To assess the quality of life (LQ) of parents/caregivers of children and adolescents with Down syndrome (DS), as well as the influence of socio-demographic aspects on the results obtained. METHODS: Participants were 31 parents/caregivers of children and adolescents with DS, divided into three groups: G1, caregivers of ten preschoolers (ages between 1 year and 5 years and 11 months); G2, caregivers of 11 school-aged children (ages between 6 years and 10 years and 11 months); and, G3, caregivers of ten pre-teens and adolescents (ages between 11 years and 15 years and 11 months). Parents/caregivers characterization: most of them were between 40 and 49 years old; high-school was the most common education level, followed by incomplete elementary school and college education; concerning the socio-economic class, most of them were from classes C and B2. The QL WHOQOL- bref protocol was administered. RESULTS: Eighty-four percent of the parents/caregivers rated their QL as "good", and 55% reported to be "satisfied" with their health. The lowest average score was found for the Environment domain, which was found to be correlated with socio-demographic variables "education degree" and "socio-economic level". No difference was found between groups when age ranges were compared. CONCLUSION: The results suggest that the studied population consider their QL as "good", and is "satisfied" with their health. The Environment domain and the socio-demographic variables "education degree" and "socio-economic level" are the aspects that influence their quality of life.
PURPOSE: To assess the quality of life (LQ) of parents/caregivers of children and adolescents with Down syndrome (DS), as well as the influence of socio-demographic aspects on the results obtained. METHODS:Participants were 31 parents/caregivers of children and adolescents with DS, divided into three groups: G1, caregivers of ten preschoolers (ages between 1 year and 5 years and 11 months); G2, caregivers of 11 school-aged children (ages between 6 years and 10 years and 11 months); and, G3, caregivers of ten pre-teens and adolescents (ages between 11 years and 15 years and 11 months). Parents/caregivers characterization: most of them were between 40 and 49 years old; high-school was the most common education level, followed by incomplete elementary school and college education; concerning the socio-economic class, most of them were from classes C and B2. The QL WHOQOL- bref protocol was administered. RESULTS: Eighty-four percent of the parents/caregivers rated their QL as "good", and 55% reported to be "satisfied" with their health. The lowest average score was found for the Environment domain, which was found to be correlated with socio-demographic variables "education degree" and "socio-economic level". No difference was found between groups when age ranges were compared. CONCLUSION: The results suggest that the studied population consider their QL as "good", and is "satisfied" with their health. The Environment domain and the socio-demographic variables "education degree" and "socio-economic level" are the aspects that influence their quality of life.
Authors: Melissa S Xanthopoulos; Rachel Walega; Rui Xiao; Divya Prasad; Mary M Pipan; Babette S Zemel; Robert I Berkowitz; Sheela N Magge; Andrea Kelly Journal: J Pediatr Date: 2017-07-24 Impact factor: 4.406
Authors: Eman Ramadan Ghazawy; Eman Sameh Mohammed; Eman Mohamed Mahfouz; Marwa Gamal Abdelrehim Journal: BMC Public Health Date: 2020-07-23 Impact factor: 3.295