OBJECTIVES: To examine whether the medical home, care coordination, or family-centered care was associated with less impact of type 1 diabetes mellitus (T1D) on families' work, finances, time, and school attendance. STUDY DESIGN: With the 2005 to 2006 National Survey of Children with Special Health Care Needs, we compared impact in children with T1D (n = 583) with that in children with other special health care needs (n = 39 944) and children without special health care needs (n = 4945). We modeled the associations of the medical home, care coordination, and family-centered care with family impact in T1D. RESULTS: Seventy-five percent of families of children with T1D reported a major impact compared with 45% of families of children with special health care needs (P < .0001) and 17% of families of children without special health care needs (P < .0001). In families of children with T1D, 35% reported restricting work, 38% reported financial impact, 41% reported medical expenses >$1000/year, 24% reported spending ≥11 hours/week caring or coordination care, and 20% reported ≥11 school absences/year. The medical home, care coordination, and family-centered care were associated with less work and financial impact. CONCLUSIONS: In childhood T1D, most families experience major impact. Better systems of health care delivery may help families reduce some of this impact.
OBJECTIVES: To examine whether the medical home, care coordination, or family-centered care was associated with less impact of type 1 diabetes mellitus (T1D) on families' work, finances, time, and school attendance. STUDY DESIGN: With the 2005 to 2006 National Survey of Children with Special Health Care Needs, we compared impact in children with T1D (n = 583) with that in children with other special health care needs (n = 39 944) and children without special health care needs (n = 4945). We modeled the associations of the medical home, care coordination, and family-centered care with family impact in T1D. RESULTS: Seventy-five percent of families of children with T1D reported a major impact compared with 45% of families of children with special health care needs (P < .0001) and 17% of families of children without special health care needs (P < .0001). In families of children with T1D, 35% reported restricting work, 38% reported financial impact, 41% reported medical expenses >$1000/year, 24% reported spending ≥11 hours/week caring or coordination care, and 20% reported ≥11 school absences/year. The medical home, care coordination, and family-centered care were associated with less work and financial impact. CONCLUSIONS: In childhood T1D, most families experience major impact. Better systems of health care delivery may help families reduce some of this impact.
Authors: Tahereh Ziaian; Michael G Sawyer; Katherine E Reynolds; Josephine A Carbone; Jennifer J Clark; Peter A Baghurst; Jennifer J Couper; Declan Kennedy; A James Martin; Rima Em Staugas; Davina J French Journal: J Paediatr Child Health Date: 2006-10 Impact factor: 1.954
Authors: Janet Silverstein; Georgeanna Klingensmith; Kenneth Copeland; Leslie Plotnick; Francine Kaufman; Lori Laffel; Larry Deeb; Margaret Grey; Barbara Anderson; Lea Ann Holzmeister; Nathaniel Clark Journal: Diabetes Care Date: 2005-01 Impact factor: 19.112
Authors: K Lange; T Danne; O Kordonouri; V Berndt; B Müller; H-P Schwarz; V Hesse; P Busse-Widmann Journal: Dtsch Med Wochenschr Date: 2004-05-14 Impact factor: 0.628
Authors: Stephanie S Crossen; James P Marcin; Lihong Qi; Hadley S Sauers-Ford; Allison M Reggiardo; Shelby T Chen; Victoria A Tran; Nicole S Glaser Journal: Diabetes Technol Ther Date: 2019-09-18 Impact factor: 6.118
Authors: Wendy S Looman; Megan Antolick; Rhonda G Cady; Scott A Lunos; Ann E Garwick; Stanley M Finkelstein Journal: J Pediatr Health Care Date: 2015-03-05 Impact factor: 1.812
Authors: Clara Y Ye; Thor C Jeppson; Ellen M Kleinmaus; Harald M Kliems; Jennifer M Schopp; Elizabeth D Cox Journal: Diabetes Educ Date: 2017-03-21 Impact factor: 2.140
Authors: Samantha A Barry; Lena Teplitsky; David V Wagner; Amit Shah; Brian T Rogers; Michael A Harris Journal: Curr Diab Rep Date: 2017-04 Impact factor: 4.810
Authors: Jean L Raphael; W Carl Cooley; Amanda Vega; Marc A Kowalkowski; Xuan Tran; Janet Treadwell; Angelo P Giardino; Thomas P Giordano Journal: J Health Care Poor Underserved Date: 2015-05