Literature DB >> 22129797

The therapeutic potential of the internet: exploring self-help processes in an internet forum for young people with inflammatory bowel disease.

Sumaira Malik1, Neil S Coulson.   

Abstract

The Internet has provided new opportunities for young people with inflammatory bowel disease to access diverse information and support, and communicate with fellow sufferers through the means of online patient support groups. The study presented in this article is the first to examine communication processes in an online support group for young people with inflammatory bowel disease. The purpose of the study was to examine the frequency and use of self-help mechanisms in communication within the online group. Content analysis was performed on a sample of 1,505 messages posted to the online support group. Results revealed that similar to face-to-face support groups, the online group offered patients the opportunity to utilize a variety of self-help mechanisms. Specifically, the group seemed to provide a unique avenue through which participants could connect with other young people suffering from inflammatory bowel disease and share personal experiences and information related to their condition. These findings suggest that online support groups may provide a novel and beneficial medium through which young people with inflammatory bowel disease can fulfill their support needs, and those involved in their care, such as nurses, may play an important role in discussing the advantages or disadvantages of this increasingly popular form of support. Further research is needed to examine the psychosocial effects of accessing such groups.

Entities:  

Mesh:

Year:  2011        PMID: 22129797     DOI: 10.1097/SGA.0b013e318237a9ba

Source DB:  PubMed          Journal:  Gastroenterol Nurs        ISSN: 1042-895X            Impact factor:   0.978


  12 in total

1.  Use of Social Media for Health-Related Tasks by Adolescents With Inflammatory Bowel Disease: A Step in the Pathway of Transition.

Authors:  Winnie Szeto; Annelotte van der Bent; Carter R Petty; Jason Reich; Francis Farraye; Laurie N Fishman
Journal:  Inflamm Bowel Dis       Date:  2018-05-18       Impact factor: 5.325

2.  "A gift wrapped in barbed wire" positive and negative life changes after being diagnosed with inflammatory bowel disease.

Authors:  Rebecca Purc-Stephenson; Desirae Bowlby; S T Qaqish
Journal:  Qual Life Res       Date:  2014-10-31       Impact factor: 4.147

3.  Inflammatory Bowel Disease Self-Management: Exploring Adolescent Use of an Online Instagram Support Community.

Authors:  Caeli Malloy; Susan M Rawl; Wendy R Miller
Journal:  Gastroenterol Nurs       Date:  2022-07-13       Impact factor: 1.159

4.  Mental health-related communication in a virtual community: text mining analysis of a digital exchange platform during the Covid-19 pandemic.

Authors:  C Golz; D Richter; N Sprecher; C Gurtner
Journal:  BMC Psychiatry       Date:  2022-06-25       Impact factor: 4.144

5.  Blogging as a viable research methodology for young people with arthritis: a qualitative study.

Authors:  Julie Prescott; Nicola J Gray; Felicity J Smith; Janet E McDonagh
Journal:  J Med Internet Res       Date:  2015-03-05       Impact factor: 5.428

6.  Use of Online Forums for Perinatal Mental Illness, Stigma, and Disclosure: An Exploratory Model.

Authors:  Donna Moore; Nicholas Drey; Susan Ayers
Journal:  JMIR Ment Health       Date:  2017-02-20

7.  Are there also negative effects of social support? A qualitative study of patients with inflammatory bowel disease.

Authors:  Alexander Palant; Wolfgang Himmel
Journal:  BMJ Open       Date:  2019-01-21       Impact factor: 2.692

8.  Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support.

Authors:  Julie Prescott; Terry Hanley; Katalin Ujhelyi
Journal:  JMIR Ment Health       Date:  2017-08-02

9.  Online stroke forum as source of data for qualitative research: insights from a comparison with patients' interviews.

Authors:  James Jamison; Stephen Sutton; Jonathan Mant; Anna De Simoni
Journal:  BMJ Open       Date:  2018-03-30       Impact factor: 2.692

10.  Parental understanding of our communication of morbidity associated with paediatric cardiac surgery: a qualitative study.

Authors:  Veena Rajagopal; Katherine Brown; Christina Pagel; Jo Wray
Journal:  BMJ Paediatr Open       Date:  2020-02-26
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