Literature DB >> 22102767

The occupational and quality of life consequences of chronic fatigue syndrome/myalgic encephalomyelitis in young people.

Renee R Taylor1, Jane O'Brien, Gary Kielhofner, Sun-Wook Lee, Ben Katz, Cynthia Mears.   

Abstract

INTRODUCTION: Chronic fatigue syndrome, termed myalgic encephalomyelitis in the United Kingdom (CFS/ME), is a debilitating condition involving severe exhaustion, cognitive difficulties, educational and vocational losses, and disruption of social activities and relationships. CFS/ME may affect volition (that is, value, interest and sense of competence).
PURPOSE: To test Model of Human Occupation (MOHO) concepts by comparing young people with and without CFS/ME in terms of occupational participation, volition and health-related quality of life during infection and over time.
METHOD: Three hundred and one people (12-18 years old) diagnosed with glandular fever were evaluated at the time of acute infection (baseline). Six months following diagnosis, 39 of them met the criteria for CFS/ME. A further 39 who recovered were randomly selected and matched to CFS/ME participants. Both groups were re-evaluated at 12 months and 24 months. The Occupational Self Assessment and the Child General Health Questionnaire were used to compare occupational participation.
RESULTS: Those with CFS/ME reported lower levels of perceived competency, more difficulties with physical functioning and poorer general health status than those who recovered.
CONCLUSION: Those with CFS/ME report lower perceived competency, and compromises in physical functioning, school performance, social activities, emotional functioning and general health. This supports the MOHO assertion that impairments affect volition and quality of life.

Entities:  

Year:  2010        PMID: 22102767      PMCID: PMC3217273          DOI: 10.4276/030802210X12892992239233

Source DB:  PubMed          Journal:  Br J Occup Ther        ISSN: 0308-0226            Impact factor:   1.243


  14 in total

1.  Comparative study of anxiety, depression, somatization, functional disability, and illness attribution in adolescents with chronic fatigue or migraine.

Authors:  Mark S Smith; Susanne P Martin-Herz; William M Womack; Julie L Marsigan
Journal:  Pediatrics       Date:  2003-04       Impact factor: 7.124

2.  The chronic fatigue syndrome: a comprehensive approach to its definition and study. International Chronic Fatigue Syndrome Study Group.

Authors:  K Fukuda; S E Straus; I Hickie; M C Sharpe; J G Dobbins; A Komaroff
Journal:  Ann Intern Med       Date:  1994-12-15       Impact factor: 25.391

3.  Chronic fatigue syndrome in children. Journal was wrong to critizise study in schoolchildren.

Authors:  E G Dowsett; J Colby
Journal:  BMJ       Date:  1997-10-11

4.  Children and adolescents with Chronic Fatigue Syndrome in non-specialist settings: beliefs, functional impairment and psychiatric disturbance.

Authors:  Josephine Richards; Jeremy Turk; Sarah White
Journal:  Eur Child Adolesc Psychiatry       Date:  2005-09       Impact factor: 4.785

5.  Course and outcome of chronic fatigue in children and adolescents.

Authors:  L R Krilov; M Fisher; S B Friedman; D Reitman; F S Mandel
Journal:  Pediatrics       Date:  1998-08       Impact factor: 7.124

6.  Chronic fatigue in adolescents.

Authors:  M S Smith; J Mitchell; L Corey; D Gold; E A McCauley; D Glover; F C Tenover
Journal:  Pediatrics       Date:  1991-08       Impact factor: 7.124

7.  Case control study of chronic fatigue in pediatric patients.

Authors:  B D Carter; J F Edwards; W G Kronenberger; L Michalczyk; G S Marshall
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124

Review 8.  Chronic fatigue syndrome: a review.

Authors:  Niloofar Afari; Dedra Buchwald
Journal:  Am J Psychiatry       Date:  2003-02       Impact factor: 18.112

9.  An approach to persons with chronic fatigue syndrome based on the model of human occupation: part one, impact on occupational performance and participation.

Authors:  Renee R Taylor; Gary W Kielhofner; Judith Abelenda; Kristen Colantuono; Terry Fong; Rose Heredia; Supriya Kulkarni; Esmeralda Vazquez
Journal:  Occup Ther Health Care       Date:  2003

10.  An occupational therapy approach to persons with chronic fatigue syndrome: part two, assessment and intervention.

Authors:  Renee R Taylor; Gary W Kielhofner
Journal:  Occup Ther Health Care       Date:  2003
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  9 in total

Review 1.  Accurate diagnosis of myalgic encephalomyelitis and chronic fatigue syndrome based upon objective test methods for characteristic symptoms.

Authors:  Frank Nm Twisk
Journal:  World J Methodol       Date:  2015-06-26

2.  Activity Pacing Self-Management in Chronic Fatigue Syndrome: A Randomized Controlled Trial.

Authors:  Daphne Kos; Inge van Eupen; Jill Meirte; Deborah Van Cauwenbergh; Greta Moorkens; Mira Meeus; Jo Nijs
Journal:  Am J Occup Ther       Date:  2015 Sep-Oct

3.  Cytokine expression profiles of immune imbalance in post-mononucleosis chronic fatigue.

Authors:  Gordon Broderick; Ben Z Katz; Henrique Fernandes; Mary Ann Fletcher; Nancy Klimas; Frederick A Smith; Maurice R G O'Gorman; Suzanne D Vernon; Renee Taylor
Journal:  J Transl Med       Date:  2012-09-13       Impact factor: 5.531

4.  Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): perspectives of health professionals from specialist services.

Authors:  Roxanne M Parslow; Alison Shaw; Kirstie L Haywood; Esther Crawley
Journal:  BMC Pediatr       Date:  2017-02-01       Impact factor: 2.125

5.  Adolescent's descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): interviews with adolescents and parents.

Authors:  Roxanne M Parslow; Nina Anderson; Danielle Byrne; Alison Shaw; Kirstie L Haywood; Esther Crawley
Journal:  BMJ Paediatr Open       Date:  2018-12-04

6.  Psychological problems as the major cause of fatigue in clients undergoing hemodialysis: A qualitative study.

Authors:  Zahra Rezaei; Amir Jalali; Rostam Jalali; Behnam Khaledi-Paveh
Journal:  Int J Nurs Sci       Date:  2018-07-05

Review 7.  The association between volition and participation in adults with acquired disabilities: A scoping review.

Authors:  Hagit Harel-Katz; Eli Carmeli
Journal:  Hong Kong J Occup Ther       Date:  2019-10-04       Impact factor: 0.917

8.  Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children.

Authors:  Roxanne M Parslow; Alison Shaw; Kirstie L Haywood; Esther Crawley
Journal:  J Patient Rep Outcomes       Date:  2019-11-09

9.  What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM.

Authors:  Roxanne Parslow; Aarti Patel; Lucy Beasant; Kirstie Haywood; Debbie Johnson; Esther Crawley
Journal:  Arch Dis Child       Date:  2015-10-09       Impact factor: 3.791

  9 in total

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