Literature DB >> 22101860

Quality of life and leisure participation in children with neurodevelopmental disabilities: a thematic analysis of the literature.

Noemi Dahan-Oliel1, Keiko Shikako-Thomas, Annette Majnemer.   

Abstract

PURPOSE: The aim of this systematic review was to document evidence of the association between leisure participation and quality of life (QoL) in children with neurodevelopmental disabilities, and to identify the main factors that further clarify this relationship.
METHODS: An electronic search of the literature was conducted using Medline, Embase, PsycInfo, CINAHL, ERIC, OT Seeker, and the Cochrane library using relevant MESH heading and key words. An inductive thematic analysis was used to synthesize main findings from the studies. The mixed methods appraisal tool (MMAT) was used to assess the methodological quality of the included studies.
RESULTS: Nineteen studies were included in this systematic review. All 19 studies fulfilled most of the criteria outlined by the MMAT for each study design (quantitative, qualitative, and mixed methods). Mixed methods studies had the lowest MMAT scores. Seven themes were identified that further elucidate the important relationships between leisure participation and QoL: active physical leisure participation and physical well-being; leisure participation and self; leisure participation and emotional well-being; leisure participation and social well-being; leisure participation and cognition; leisure preferences and well-being; and negative aspects of leisure participation.
CONCLUSIONS: The use of thematic analysis enabled the synthesis of findings from quantitative, qualitative, and mixed methods study designs. Participating in both naturally occurring, spontaneous forms of leisure activities and participating in more structured types of leisure and therapeutic programs that focus on leisure contribute to improving the QoL of children with neurodevelopmental disabilities. A key aspect to consider is the child's ability to participate in his/her preferred leisure activities. Environmental adaptations may be required to ensure that the leisure opportunities meet the children's capabilities and contribute positively to their QoL.

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Year:  2011        PMID: 22101860     DOI: 10.1007/s11136-011-0063-9

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  34 in total

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Review 2.  A scoring system for appraising mixed methods research, and concomitantly appraising qualitative, quantitative and mixed methods primary studies in Mixed Studies Reviews.

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Review 3.  Quality of life and participation.

Authors:  Allan Colver
Journal:  Dev Med Child Neurol       Date:  2009-08       Impact factor: 5.449

4.  Health-related quality of life in childhood epilepsy: the results of children's participation in identifying the components.

Authors:  G M Ronen; P Rosenbaum; M Law; D L Streiner
Journal:  Dev Med Child Neurol       Date:  1999-08       Impact factor: 5.449

5.  Osteopenia, physical activity and health-related quality of life in survivors of brain tumors treated in childhood.

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6.  A qualitative analysis of the benefits of strength training for young people with cerebral palsy.

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7.  Loneliness and life satisfaction of boys with developmental coordination disorder: the impact of leisure participation and perceived freedom in leisure.

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8.  Rites of passage: understanding participation of children with developmental coordination disorder.

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9.  Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents.

Authors:  Elise Davis; Amy Shelly; Elizabeth Waters; Andrew Mackinnon; Dinah Reddihough; Roslyn Boyd; H Kerr Graham
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10.  Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland.

Authors:  Vicki Mc Manus; Paul Corcoran; Ivan J Perry
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  21 in total

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Review 2.  What is QOL in children and adolescents with physical disabilities? A thematic synthesis of pediatric QOL literature.

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3.  Physical activity and walking performance: Influence on quality of life in ambulatory children with cerebral palsy (CP).

Authors:  Kilby Mann; Elaine Tsao; Kristie F Bjornson
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4.  Participation According to Clinicians Working with Young Children with Developmental Disabilities: A Long Way to Go.

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5.  Health-related quality of life of children and adolescents with functional disabilities in a northern Swedish county.

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Journal:  Qual Life Res       Date:  2013-12-31       Impact factor: 4.147

6.  Case series of technology-aided interventions to support leisure and communication in extensive disabilities.

Authors:  Giulio E Lancioni; Nirbhay N Singh; Mark F O'Reilly; Jeff Sigafoos; Gloria Alberti; Viviana Perilli; Valeria Chiariello; Giovanna Grillo; Cosimo Turi
Journal:  Int J Dev Disabil       Date:  2018-11-18

7.  Predictors of participation of adolescents with cerebral palsy: A European multi-centre longitudinal study.

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8.  Associations of sport participation with self-perception, exercise self-efficacy and quality of life among children and adolescents with a physical disability or chronic disease-a cross-sectional study.

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9.  Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy.

Authors:  Keiko Shikako-Thomas; Noémi Dahan-Oliel; Michael Shevell; Mary Law; Rena Birnbaum; Peter Rosenbaum; Chantal Poulin; Annette Majnemer
Journal:  Int J Pediatr       Date:  2012-08-07

10.  Enhancing Youth Participation Using the PREP Intervention: Parents' Perspectives.

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