| Literature DB >> 22078657 |
Blake W Palmer1, Amy B Wisniewski, Traci L Schaeffer, Ashwini Mallappa, Jeanie B Tryggestad, Sowmya Krishnan, Laura J Chalmers, Kenneth Copeland, Steven D Chernausek, William G Reiner, Bradley P Kropp.
Abstract
In 2006, a consensus statement was jointly produced by the Lawson Wilkins Pediatric Endocrine Society (LWPES) and the European Society of Paediatric Endocrinology (ESPE) concerning the management of disorders of sex development (DSD) [1]. A recommendation provided by this consensus was that evaluation and long-term care for people affected by DSD should be performed at medical centers with multi-disciplinary teams experienced in such conditions. Here we provide our team's interpretation of the 2006 consensus statement recommendations and its translation into a clinical protocol for individuals affected by 46 XY DSD with either female, or ambiguous, genitalia at birth. Options for medical and surgical management, transitioning of care, and the use of mental health services and peer support groups are discussed. Finally, we provide preliminary data to support the application of our model for delivering multi-disciplinary care and support to patients and their families.Entities:
Mesh：
Year: 2011 PMID： 22078657 DOI： 10.1016/j.jpurol.2011.08.013
Source DB: PubMed Journal: J Pediatr Urol ISSN： 1477-5131 Impact factor: 1.830