Literature DB >> 22075527

Clinical utility of family history for cancer screening and referral in primary care: a report from the Family Healthware Impact Trial.

Wendy S Rubinstein1, Louise S Acheson, Suzanne M O'Neill, Mack T Ruffin, Catharine Wang, Jennifer L Beaumont, Nan Rothrock.   

Abstract

PURPOSE: To assess the effectiveness of computerized familial risk assessment and tailored messages for identifying individuals for targeted cancer prevention strategies and motivating behavior change.
METHODS: We conducted a randomized clinical trial in primary care patients aged 35-65 years using Family Healthware, a self-administered, internet-based tool that collects family history for six common diseases including breast cancer, colon cancer, and ovarian cancer, stratifies risk into three tiers, and provides tailored prevention messages. Cancer screening adherence and consultation were measured at baseline and 6-month follow-up.
RESULTS: Of 3283 participants, 34% were at strong or moderate risk of at least one of the cancers. Family Healthware identified additional participants for whom earlier screening (colon cancer, 4.4%; breast cancer, women ages: 35-39 years, 9%) or genetic assessment (colon cancer, 2.5%; breast cancer, 10%; and ovarian cancer, 4%) may be indicated. Fewer than half were already adherent with risk-based screening. Screening adherence improved for all risk categories with no difference between intervention and control groups. Consultation with specialists did not differ between groups.
CONCLUSION: Family Healthware identified patients for intensified cancer prevention. Engagement of clinicians and patients, integration with clinical decision support, and inclusion of nonfamilial risk factors may be necessary to achieve the full potential of computerized risk assessment.

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Mesh:

Year:  2011        PMID: 22075527      PMCID: PMC3425444          DOI: 10.1097/GIM.0b013e3182241d88

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  35 in total

1.  Colorectal cancer prevention 2000: screening recommendations of the American College of Gastroenterology. American College of Gastroenterology.

Authors:  D K Rex; D A Johnson; D A Lieberman; R W Burt; A Sonnenberg
Journal:  Am J Gastroenterol       Date:  2000-04       Impact factor: 10.864

Review 2.  The transtheoretical model of health behavior change.

Authors:  J O Prochaska; W F Velicer
Journal:  Am J Health Promot       Date:  1997 Sep-Oct

3.  Referral to cancer genetic counseling: are there stages of readiness?

Authors:  Suzanne M O'Neill; June A Peters; Victor G Vogel; Eleanor Feingold; Wendy S Rubinstein
Journal:  Am J Med Genet C Semin Med Genet       Date:  2006-11-15       Impact factor: 3.908

Review 4.  Improving clinical practice using clinical decision support systems: a systematic review of trials to identify features critical to success.

Authors:  Kensaku Kawamoto; Caitlin A Houlihan; E Andrew Balas; David F Lobach
Journal:  BMJ       Date:  2005-03-14

5.  Identification and referral of families at high risk for cancer susceptibility.

Authors:  Kevin M Sweet; Terry L Bradley; Judith A Westman
Journal:  J Clin Oncol       Date:  2002-01-15       Impact factor: 44.544

6.  Results of a community pharmacy-based breast cancer risk-assessment and education program.

Authors:  J T Giles; D T Kennedy; E C Dunn; W L Wallace; S L Meadows; A C Cafiero
Journal:  Pharmacotherapy       Date:  2001-02       Impact factor: 4.705

7.  Projecting individualized probabilities of developing breast cancer for white females who are being examined annually.

Authors:  M H Gail; L A Brinton; D P Byar; D K Corle; S B Green; C Schairer; J J Mulvihill
Journal:  J Natl Cancer Inst       Date:  1989-12-20       Impact factor: 13.506

8.  Carrier risk status changes resulting from mutation testing in hereditary non-polyposis colorectal cancer and hereditary breast-ovarian cancer.

Authors:  P Watson; S A Narod; R Fodde; A Wagner; J F Lynch; S T Tinley; C L Snyder; S A Coronel; B Riley; Y Kinarsky; H T Lynch
Journal:  J Med Genet       Date:  2003-08       Impact factor: 6.318

9.  Surveillance of BRCA1 and BRCA2 mutation carriers with magnetic resonance imaging, ultrasound, mammography, and clinical breast examination.

Authors:  Ellen Warner; Donald B Plewes; Kimberley A Hill; Petrina A Causer; Judit T Zubovits; Roberta A Jong; Margaret R Cutrara; Gerrit DeBoer; Martin J Yaffe; Sandra J Messner; Wendy S Meschino; Cameron A Piron; Steven A Narod
Journal:  JAMA       Date:  2004-09-15       Impact factor: 56.272

10.  Population prevalence of familial cancer and common hereditary cancer syndromes. The 2005 California Health Interview Survey.

Authors:  Maren T Scheuner; Timothy S McNeel; Andrew N Freedman
Journal:  Genet Med       Date:  2010-11       Impact factor: 8.822

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  45 in total

1.  Genetic cancer risk assessment in general practice: systematic review of tools available, clinician attitudes, and patient outcomes.

Authors:  Flore Laforest; Pia Kirkegaard; Baljinder Mann; Adrian Edwards
Journal:  Br J Gen Pract       Date:  2018-12-03       Impact factor: 5.386

2.  Geographic Variation in Overscreening for Colorectal, Cervical, and Breast Cancer Among Older Adults.

Authors:  Jennifer L Moss; Siddhartha Roy; Chan Shen; Joie D Cooper; Robert P Lennon; Eugene J Lengerich; Alan Adelman; William Curry; Mack T Ruffin
Journal:  JAMA Netw Open       Date:  2020-07-01

3.  The impact of stratifying by family history in colorectal cancer screening programs.

Authors:  Simon Lucas Goede; Linda Rabeneck; Iris Lansdorp-Vogelaar; Ann G Zauber; Lawrence F Paszat; Jeffrey S Hoch; Jean H E Yong; Frank van Hees; Jill Tinmouth; Marjolein van Ballegooijen
Journal:  Int J Cancer       Date:  2015-02-20       Impact factor: 7.396

4.  Constructing data-derived family histories using electronic health records from a single healthcare delivery system.

Authors:  Maya Leventer-Roberts; Ilan Gofer; Yuval Barak Corren; Ben Y Reis; Ran Balicer
Journal:  Eur J Public Health       Date:  2020-04-01       Impact factor: 3.367

Review 5.  The impact of health information technology on cancer care across the continuum: a systematic review and meta-analysis.

Authors:  Will L Tarver; Nir Menachemi
Journal:  J Am Med Inform Assoc       Date:  2015-07-15       Impact factor: 4.497

Review 6.  What characterizes cancer family history collection tools? A critical literature review.

Authors:  J E Cleophat; H Nabi; S Pelletier; K Bouchard; M Dorval
Journal:  Curr Oncol       Date:  2018-08-14       Impact factor: 3.677

Review 7.  Clinical decision support for genetically guided personalized medicine: a systematic review.

Authors:  Brandon M Welch; Kensaku Kawamoto
Journal:  J Am Med Inform Assoc       Date:  2012-08-25       Impact factor: 4.497

8.  Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal.

Authors:  Adarsha S Bajracharya; Bradley H Crotty; Hollis B Kowoloff; Charles Safran; Warner V Slack
Journal:  J Am Med Inform Assoc       Date:  2019-07-01       Impact factor: 4.497

9.  Telehealth personalized cancer risk communication to motivate colonoscopy in relatives of patients with colorectal cancer: the family CARE Randomized controlled trial.

Authors:  Anita Y Kinney; Watcharaporn Boonyasiriwat; Scott T Walters; Lisa M Pappas; Antoinette M Stroup; Marc D Schwartz; Sandra L Edwards; Amy Rogers; Wendy K Kohlmann; Kenneth M Boucher; Sally W Vernon; Rebecca G Simmons; Jan T Lowery; Kristina Flores; Charles L Wiggins; Deirdre A Hill; Randall W Burt; Marc S Williams; John C Higginbotham
Journal:  J Clin Oncol       Date:  2014-01-21       Impact factor: 44.544

10.  Family Ties: The Role of Family Context in Family Health History Communication About Cancer.

Authors:  Vivian M Rodríguez; Rosalie Corona; Joann N Bodurtha; John M Quillin
Journal:  J Health Commun       Date:  2016-01-06
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