Literature DB >> 22050619

Living with an adult family member using advanced medical technology at home.

Angelika Fex1, Gullvi Flensner, Anna-Christina Ek, Olle Söderhamn.   

Abstract

Living with an adult family member using advanced medical technology at home An increased number of chronically ill adults perform self-care while using different sorts of advanced medical technology at home. This hermeneutical study aimed to gain a deeper understanding of the meaning of living with an adult family member using advanced medical technology at home. Eleven next of kin to adults performing self-care at home, either using long-term oxygen from a cylinder or ventilator, or performing peritoneal or haemodialysis, were interviewed. The qualitative interviews were analysed using a Gadamerian methodology. The main interpretation explained the meaning as rhythmical patterns of connectedness versus separation, and of sorrow versus reconciliation. Dependence on others was shown in the need for support from healthcare professionals and significant others. In conclusion, next of kin took considerable responsibility for dependent-care. All next of kin were positive to the idea of bringing the technology home, even though their own needs receded into the background, while focusing on the best for the patient. The results were discussed in relation to dependent-care and transition, which may have an influence on the self-care of next of kin and patients. The study revealed a need for further nursing attention to next of kin in this context.
© 2011 Blackwell Publishing Ltd.

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Year:  2011        PMID: 22050619     DOI: 10.1111/j.1440-1800.2011.00535.x

Source DB:  PubMed          Journal:  Nurs Inq        ISSN: 1320-7881            Impact factor:   2.393


  3 in total

1.  Social Support in the Peritoneal Dialysis Experience: A Qualitative Descriptive Study.

Authors:  Danielle E Fox; Robert R Quinn; Matthew T James; Lorraine Venturato; Kathryn M King-Shier
Journal:  Can J Kidney Health Dis       Date:  2020-08-08

2.  Family Caregiver Support of Patient Self-Management During Chronic, Life-Limiting Illness: A Qualitative Metasynthesis.

Authors:  Dena Schulman-Green; Shelli L Feder; J Nicholas Dionne-Odom; Janene Batten; Victoria Jane En Long; Yolanda Harris; Abigail Wilpers; Tiffany Wong; Robin Whittemore
Journal:  J Fam Nurs       Date:  2020-12-17       Impact factor: 3.818

3.  "I see myself as part of the team" - family caregivers' contribution to safety in advanced home care.

Authors:  Christiane Schaepe; Michael Ewers
Journal:  BMC Nurs       Date:  2018-09-14
  3 in total

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