PURPOSE: The stigma experienced by the family members of an individual with a stigmatized illness is defined by 3 dimensions: caregiver stigma, lay public stigma, and structural stigma. Research in the area of mental illness suggests that caregivers' perception of stigma is associated with increased burden. However, the effect of stigma on caregiver burden among those caring for a relative with Alzheimer's disease (AD) has yet to undergo theoretical and empirical testing. The aim of this study was to examine whether family stigma is a predictor of caregiver burden in the case of Alzheimer's disease. DESIGN AND METHODS: Structured face-to-face interviews were conducted with 185 adult child caregivers (75% female; mean age = 53 years) for persons with Alzheimer's disease. RESULTS: Caregiver stigma variables improved the prediction of caregiver burden by adding an additional 18% to the explained variance over and above the other covariates. The 2 caregiver stigma variables of shame and decreased involvement with caregiving were found to be the major contributing factors. IMPLICATIONS: Our findings show that caregiver stigma increases caregiver burden in the case of Alzheimer's disease. Using this knowledge, psychosocial interventions should target stigmatic beliefs in order to reduce caregiver burden.
PURPOSE: The stigma experienced by the family members of an individual with a stigmatized illness is defined by 3 dimensions: caregiver stigma, lay public stigma, and structural stigma. Research in the area of mental illness suggests that caregivers' perception of stigma is associated with increased burden. However, the effect of stigma on caregiver burden among those caring for a relative with Alzheimer's disease (AD) has yet to undergo theoretical and empirical testing. The aim of this study was to examine whether family stigma is a predictor of caregiver burden in the case of Alzheimer's disease. DESIGN AND METHODS: Structured face-to-face interviews were conducted with 185 adult child caregivers (75% female; mean age = 53 years) for persons with Alzheimer's disease. RESULTS: Caregiver stigma variables improved the prediction of caregiver burden by adding an additional 18% to the explained variance over and above the other covariates. The 2 caregiver stigma variables of shame and decreased involvement with caregiving were found to be the major contributing factors. IMPLICATIONS: Our findings show that caregiver stigma increases caregiver burden in the case of Alzheimer's disease. Using this knowledge, psychosocial interventions should target stigmatic beliefs in order to reduce caregiver burden.
Authors: Sarah Kellner; Sarah Morgan; Jesus Gutierrez; Kathleen Collins; Brittany Rohl; Fanny Migliore; Stephanie Cosentino; Edward D Huey; Elan D Louis; Joan K Monin Journal: J Neurol Sci Date: 2017-11-20 Impact factor: 3.181
Authors: A Carnes; E Barallat-Gimeno; A Galvan; B Lara; A Lladó; J Contador-Muñana; A Vega-Rodriguez; M A Escobar; G Piñol-Ripoll Journal: BMC Geriatr Date: 2021-05-10 Impact factor: 3.921
Authors: Evan Polzer; Kathryn Nearing; Christopher E Knoepke; Daniel D Matlock; Alexander McCourt; Marian E Betz Journal: Int Rev Psychiatry Date: 2021-04-01
Authors: Herbert E Ainamani; Wilson M Bamwerinde; Godfrey Z Rukundo; Sam Tumwesigire; Rebecca M Kalibwani; Evard M Bikaitwaho; Alexander C Tsai Journal: Prev Med Rep Date: 2021-05-30