Literature DB >> 22039176

Paediatric palliative medicine in the UK: past, present, future.

Richard Hain1, Emma Heckford, Renée McCulloch.   

Abstract

Like any new specialty, paediatric palliative medicine is facing challenges as it establishes itself. While many of the required core skills have their roots in adult palliative medicine, its practitioners come from a range of paediatric backgrounds that include oncology, community paediatrics, neurodisability and acute pain. Such heterogeneity has been invaluable in bringing together the diverse set of skills and competencies needed by children and families facing life-limiting illness. At the same time, it brings its own challenges in establishing consistent standards of clinical expertise, education and research--essential if children are to have access to the same degree of medical expertise in palliative care already available to most adults. This article traces the origins of palliative care in children, examines its current strengths and challenges, and considers how those might shape its future.

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Year:  2011        PMID: 22039176     DOI: 10.1136/archdischild-2011-300432

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN: 0003-9888            Impact factor:   3.791


  13 in total

Review 1.  Management of adult and paediatric acute lymphoblastic leukaemia in Asia: resource-stratified guidelines from the Asian Oncology Summit 2013.

Authors:  Allen E J Yeoh; Daryl Tan; Chi-Kong Li; Hiroki Hori; Eric Tse; Ching-Hon Pui
Journal:  Lancet Oncol       Date:  2013-11       Impact factor: 41.316

2.  End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom [version 1; peer review: 2 approved].

Authors:  Andrew Papworth; Julia Hackett; Bryony Beresford; Fliss Murtagh; Helen Weatherly; Sebastian Hinde; Andre Bedendo; Gabriella Walker; Jane Noyes; Sam Oddie; Chakrapani Vasudevan; Richard Feltbower; Bob Phillips; Richard Hain; Gayathri Subramanian; Andrew Haynes; Lorna K Fraser
Journal:  NIHR Open Res       Date:  2022-05-13

3.  The development of an instrument that can identify children with palliative care needs: the Paediatric Palliative Screening Scale (PaPaS Scale): a qualitative study approach.

Authors:  Eva Bergstraesser; Richard D Hain; José L Pereira
Journal:  BMC Palliat Care       Date:  2013-05-08       Impact factor: 3.234

4.  Pediatric Oncology Palliative Care: Experiences of General Practitioners and Bereaved Parents.

Authors:  Sue J Neilson; Faith Gibson; Sheila M Greenfield
Journal:  J Palliat Care Med       Date:  2015-03-01

5.  The Role of Play in Children's Palliative Care.

Authors:  Sue Boucher; Julia Downing; Rise Shemilt
Journal:  Children (Basel)       Date:  2014-10-01

6.  The journey through care: study protocol for a longitudinal qualitative interview study to investigate the healthcare experiences and preferences of children and young people with life-limiting and life-threatening conditions and their families in the West Midlands, UK.

Authors:  Sarah Mitchell; Anne-Marie Slowther; Jane Coad; Jeremy Dale
Journal:  BMJ Open       Date:  2018-01-21       Impact factor: 2.692

7.  Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.

Authors:  Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale
Journal:  Palliat Med       Date:  2019-08-21       Impact factor: 4.762

8.  Experiences of healthcare, including palliative care, of children with life-limiting and life-threatening conditions and their families: a longitudinal qualitative investigation.

Authors:  Sarah Mitchell; Anne-Marie Slowther; Jane Coad; Jeremy Dale
Journal:  Arch Dis Child       Date:  2020-11-16       Impact factor: 3.791

9.  Evidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar.

Authors:  Jane Noyes; Rhiannon Tudor Edwards; Richard P Hastings; Richard Hain; Vasiliki Totsika; Virginia Bennett; Lucie Hobson; Gareth R Davies; Ciarán Humphreys; Mary Devins; Llinos Haf Spencer; Mary Lewis
Journal:  BMC Palliat Care       Date:  2013-04-25       Impact factor: 3.234

10.  A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life.

Authors:  Katie Greenfield; Simone Holley; Daniel E Schoth; Emily Harrop; Richard F Howard; Julie Bayliss; Lynda Brook; Satbir S Jassal; Margaret Johnson; Ian Wong; Christina Liossi
Journal:  Palliat Med       Date:  2020-03-31       Impact factor: 4.762

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