Literature DB >> 22021296

Community participatory research with deaf sign language users to identify health inequities.

Steven Barnett1, Jonathan D Klein, Robert Q Pollard, Vincent Samar, Deirdre Schlehofer, Matthew Starr, Erika Sutter, Hongmei Yang, Thomas A Pearson.   

Abstract

Deaf people who use American Sign Language (ASL) are medically underserved and often excluded from health research and surveillance. We used a community participatory approach to develop and administer an ASL-accessible health survey. We identified deaf community strengths (e.g., a low prevalence of current smokers) and 3 glaring health inequities: obesity, partner violence, and suicide. This collaborative work represents the first time a deaf community has used its own data to identify health priorities.

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Year:  2011        PMID: 22021296      PMCID: PMC3222424          DOI: 10.2105/AJPH.2011.300247

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  15 in total

1.  Smoking and deaf adults: associations with age at onset of deafness.

Authors:  S Barnett; P Franks
Journal:  Am Ann Deaf       Date:  1999-03

2.  Is tobacco use a problem among deaf college students?

Authors:  Barbara A Berman; Coen Bernaards; Elizabeth A Eckhardt; Heidi B Kleiger; Lauren Maucere; Leanne Streja; Glenn Wong; Shari Barkin; Roshan Bastani
Journal:  Am Ann Deaf       Date:  2006

Review 3.  Clinical and cultural issues in caring for deaf people.

Authors:  S Barnett
Journal:  Fam Med       Date:  1999-01       Impact factor: 1.756

4.  Health care utilization and adults who are deaf: relationship with age at onset of deafness.

Authors:  Steven Barnett; Peter Franks
Journal:  Health Serv Res       Date:  2002-02       Impact factor: 3.402

5.  Prevalence of hearing loss and differences by demographic characteristics among US adults: data from the National Health and Nutrition Examination Survey, 1999-2004.

Authors:  Yuri Agrawal; Elizabeth A Platz; John K Niparko
Journal:  Arch Intern Med       Date:  2008-07-28

6.  Cardiovascular disease knowledge among culturally Deaf patients in Chicago.

Authors:  Helen Margellos-Anast; Melanie Estarziau; Gary Kaufman
Journal:  Prev Med       Date:  2006-02-03       Impact factor: 4.018

7.  Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults. The Adverse Childhood Experiences (ACE) Study.

Authors:  V J Felitti; R F Anda; D Nordenberg; D F Williamson; A M Spitz; V Edwards; M P Koss; J S Marks
Journal:  Am J Prev Med       Date:  1998-05       Impact factor: 5.043

8.  Validity of cardiovascular disease risk factors assessed by telephone survey: the Behavioral Risk Factor Survey.

Authors:  S J Bowlin; B D Morrill; A N Nafziger; P L Jenkins; C Lewis; T A Pearson
Journal:  J Clin Epidemiol       Date:  1993-06       Impact factor: 6.437

9.  Deaf sign language users, health inequities, and public health: opportunity for social justice.

Authors:  Steven Barnett; Michael McKee; Scott R Smith; Thomas A Pearson
Journal:  Prev Chronic Dis       Date:  2011-02-15       Impact factor: 2.830

10.  Suicide in deaf populations: a literature review.

Authors:  Oliver Turner; Kirsten Windfuhr; Navneet Kapur
Journal:  Ann Gen Psychiatry       Date:  2007-10-08       Impact factor: 3.455

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  39 in total

1.  Adapting the pregnancy risk assessment monitoring survey to enhance locally available data: methods.

Authors:  Ann M Dozier; Elizabeth Brownell; Joseph Guido; Hongmei Yang; Cynthia A Howard; Andrew Doniger; Deborah Ossip; Ruth Lawrence
Journal:  Matern Child Health J       Date:  2014-07

2.  Deaf genetic testing and psychological well-being in deaf adults.

Authors:  Christina G S Palmer; Patrick Boudreault; Erin E Baldwin; Michelle Fox; Joshua L Deignan; Yoko Kobayashi; Yvonne Sininger; Wayne Grody; Janet S Sinsheimer
Journal:  J Genet Couns       Date:  2013-02-21       Impact factor: 2.537

3.  Deaf Adolescents' Learning of Cardiovascular Health Information: Sources and Access Challenges.

Authors:  Scott R Smith; Poorna Kushalnagar; Peter C Hauser
Journal:  J Deaf Stud Deaf Educ       Date:  2015-06-04

4.  Culture-centeredness in community-based participatory research: contributions to health education intervention research.

Authors:  Nina Wallerstein; John G Oetzel; Bonnie Duran; Maya Magarati; Cynthia Pearson; Lorenda Belone; Joyce Davis; Lori DeWindt; Sarah Kastelic; Julie Lucero; Charmaine Ruddock; Erika Sutter; Mohan J Dutta
Journal:  Health Educ Res       Date:  2019-08-01

5.  Treatment of Deaf Clients: Ethical Considerations for Professionals in Psychology.

Authors:  Cassandra L Boness
Journal:  Ethics Behav       Date:  2015-08-25

6.  Assessing Health Literacy in Deaf American Sign Language Users.

Authors:  Michael M McKee; Michael K Paasche-Orlow; Paul C Winters; Kevin Fiscella; Philip Zazove; Ananda Sen; Thomas Pearson
Journal:  J Health Commun       Date:  2015

7.  Higher educational attainment but not higher income is protective for cardiovascular risk in Deaf American Sign Language (ASL) users.

Authors:  Michael M McKee; Kimberly McKee; Paul Winters; Erika Sutter; Thomas Pearson
Journal:  Disabil Health J       Date:  2013-08-28       Impact factor: 2.554

8.  Deaf people's help-seeking following trauma: Experiences with and recommendations for the Massachusetts behavioral health care system.

Authors:  Melissa L Anderson; Kelly S Wolf Craig; Douglas M Ziedonis
Journal:  Psychol Trauma       Date:  2016-10-31

9.  Deaf ACCESS: Adapting Consent Through Community Engagement and State-of-the-Art Simulation.

Authors:  Melissa L Anderson; Timothy Riker; Stephanie Hakulin; Jonah Meehan; Kurt Gagne; Todd Higgins; Elizabeth Stout; Emma Pici-D'Ottavio; Kelsey Cappetta; Kelly S Wolf Craig
Journal:  J Deaf Stud Deaf Educ       Date:  2020-01-03

10.  Deaf mothers and breastfeeding: do unique features of deaf culture and language support breastfeeding success?

Authors:  Nancy P Chin; Jessica Cuculick; Matthew Starr; Tiffany Panko; Holly Widanka; Ann Dozier
Journal:  J Hum Lact       Date:  2013-03-14       Impact factor: 2.219

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