Literature DB >> 21989442

National Cancer Information Service in Italy: an information points network as a new model for providing information for cancer patients.

Ivana Truccolo1, Rosaria Bufalino, Maria Antonietta Annunziata, Anita Caruso, Anna Costantini, Gaetana Cognetti, Antonio Florita, Dina Pero, Patrizia Pugliese, Roberta Tancredi, Francesco De Lorenzo.   

Abstract

The international literature data report that good information and communication are fundamental components of a therapeutic process. They contribute to improve the patient-health care professional relationship, to facilitate doctor-patient relationships, therapeutic compliance and adherence, and to the informed consent in innovative clinical trials. We report the results of a multicentric national initiative that developed a 17-information-structure network: 16 Information Points located in the major state-funded certified cancer centers and general hospitals across Italy and a national Help-line at the nonprofit organization AIMaC (the Italian oncologic patients, families and friends association), and updated the already existing services with the aim to create the National Cancer Information Service (SION). The project is the result of a series of pilot and research projects funded by the Italian Ministry of Health. The Information Service model proposed is based on some fundamental elements: 1) human interaction with experienced operators, adequately trained in communication and information, complemented with 2) virtual interaction (Help line, Internet, blog, forum and social network); 3) informative material adequate for both scientific accuracy and communicative style; 4) adequate locations for appropriate positioning and privacy (adequate visibility); 5) appropriate advertising. First results coming from these initiatives contributed to introduce issues related to "Communication and Information to patients" as a "Public Health Instrument" to the National Cancer Plan approved by the Ministry of Health for the years 2010-2012.

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Year:  2011        PMID: 21989442     DOI: 10.1177/030089161109700416

Source DB:  PubMed          Journal:  Tumori        ISSN: 0300-8916


  4 in total

1.  Patient-Centered Cancer Care Programs in Italy: Benchmarking Global Patient Education Initiatives.

Authors:  Ivana Truccolo; Chiara Cipolat Mis; Silvia Cervo; Luigino Dal Maso; Marilena Bongiovanni; Alessandra Bearz; Ivana Sartor; Paolo Baldo; Emanuela Ferrarin; Lucia Fratino; Maurizio Mascarin; Mario Roncadin; Maria Antonietta Annunziata; Barbara Muzzatti; Paolo De Paoli
Journal:  J Cancer Educ       Date:  2016-06       Impact factor: 2.037

2.  The impact of a "narrative interview" intervention in oncology. A study protocol for a feasibility study.

Authors:  Giovanna Artioli; Chiara Foà; Maria Bertuol; Linda Benzi; Laura Deiana; Chiara Meneghetti; Cecilia Neri; Laura Pigoni; Martina Zanotti; Leopoldo Sarli
Journal:  Acta Biomed       Date:  2020-06-20

3.  Making patient centered care a reality: a survey of patient educational programs in Italian Cancer Research and Care Institutes.

Authors:  C Cipolat Mis; I Truccolo; V Ravaioli; S Cocchi; L Gangeri; P Mosconi; C Drace; L Pomicino; A Paradiso; P De Paoli
Journal:  BMC Health Serv Res       Date:  2015-07-30       Impact factor: 2.655

4.  Alliance Against Cancer, the network of Italian cancer centers bridging research and care.

Authors:  Paolo De Paoli; Gennaro Ciliberto; Manlio Ferrarini; PierGiuseppe Pelicci; Paolo Dellabona; Francesco De Lorenzo; Alberto Mantovani; Pellegrino Musto; Giuseppe Opocher; Piero Picci; Walter Ricciardi; Ruggero De Maria
Journal:  J Transl Med       Date:  2015-11-14       Impact factor: 5.531

  4 in total

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