AIM: This study examines couples' experiences of living together when one partner has advanced chronic obstructive pulmonary disease (COPD). METHOD: Repeated qualitative interviews with four couples over an eight-month period, where one spouse in each couple suffered from advanced COPD. The final dataset comprised 19 interviews. A phenomenological-hermeneutical method was used to interpret the interview text. FINDINGS: One main theme, "living with the disease and one's spouse in a new and changeable life rhythm", emerged from three subthemes: "living with uncertainty", "living in a changed intimate relationship", and "finding new ways of living together". A mutual sense of companionship between the spouses facilitated their chances of reshaping their relationship and adapting it to the new life rhythm required by everyday life with the disease. CONCLUSION: The healthy spouse had major responsibility for the health of their sick spouse. Awareness of the couple's own conceptions and knowledge of health and illness is central to person-focused care, as is awareness of what values are important to them when restructuring their everyday life.
AIM: This study examines couples' experiences of living together when one partner has advanced chronic obstructive pulmonary disease (COPD). METHOD: Repeated qualitative interviews with four couples over an eight-month period, where one spouse in each couple suffered from advanced COPD. The final dataset comprised 19 interviews. A phenomenological-hermeneutical method was used to interpret the interview text. FINDINGS: One main theme, "living with the disease and one's spouse in a new and changeable life rhythm", emerged from three subthemes: "living with uncertainty", "living in a changed intimate relationship", and "finding new ways of living together". A mutual sense of companionship between the spouses facilitated their chances of reshaping their relationship and adapting it to the new life rhythm required by everyday life with the disease. CONCLUSION: The healthy spouse had major responsibility for the health of their sick spouse. Awareness of the couple's own conceptions and knowledge of health and illness is central to person-focused care, as is awareness of what values are important to them when restructuring their everyday life.
Authors: Paolo Banfi; Antonietta Cappuccio; Maura E Latella; Luigi Reale; Elisa Muscianisi; Maria Giulia Marini Journal: Int J Chron Obstruct Pulmon Dis Date: 2018-01-11
Authors: Diana H Ferreira; Slavica Kochovska; Aaron Honson; Jane L Phillips; David C Currow Journal: BMC Palliat Care Date: 2020-05-06 Impact factor: 3.234