Literature DB >> 21925013

The International Pemphigus and Pemphigoid Foundation.

Dédée F Murrell1, Victoria P Werth, Janet Segall, Will Zrnchik, Molly Stuart, David Sirois.   

Abstract

The International Pemphigus Pemphigoid Foundation (IPFF) was founded in 1997. The IPPF lists more than 4500 members. The IPPF provides peer health coaches to aid patients in the navigation of the health care system and recommends dermatologists and other specialists in their area who are experts in autoimmune bullous disease. The IPPF hosts the largest worldwide registry of pemphigus/pemphigoid patients with biospecimen collection opportunities are planned. Twice a year the IPPF hosts formal meetings with invited speakers.
Copyright © 2011 Elsevier Inc. All rights reserved.

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Year:  2011        PMID: 21925013     DOI: 10.1016/j.det.2011.06.019

Source DB:  PubMed          Journal:  Dermatol Clin        ISSN: 0733-8635            Impact factor:   3.478


  1 in total

1.  The impacts of a health belief model-based educational program on adopting self-care behaviors in pemphigus vulgaris patients.

Authors:  Roya Sadeghi; Azar Tol; Azita Moradi; Masoud Baikpour; Mostafa Hossaini
Journal:  J Educ Health Promot       Date:  2015-12-30
  1 in total

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