Literature DB >> 21911316

Parenting characteristics of female caregivers of children affected by chronic endocrine conditions: a comparison between disorders of sex development and type 1 diabetes mellitus.

Katherine D Kirk1, David A Fedele, Cortney Wolfe-Christensen, Timothy M Phillips, Tom Mazur, Larry L Mullins, Steven D Chernausek, Amy B Wisniewski.   

Abstract

Rearing a child with a chronic illness is stressful and can potentially affect parenting style, which may result in poorer outcomes for children. The purpose of this study was to compare parenting characteristics of female caregivers rearing children with a disorder of sex development (DSD) to female caregivers rearing children with type 1 diabetes mellitus (T1DM). Caregivers of both groups were matched according to age and compared on measures of stress and parenting practices. Both groups demonstrated significant levels of stress and negative parenting practices. Children with T1DM and male children with non-life-threatening DSD were perceived as more vulnerable by their caregivers. Better understanding of parenting experiences of female caregivers rearing children with DSD, particularly male children, will facilitate the development of individualized interventions to ameliorate negative parenting practices and stress, with the long-term goal of improved health outcomes for their children. Copyright Â
© 2011 Elsevier Inc. All rights reserved.

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Year:  2010        PMID: 21911316     DOI: 10.1016/j.pedn.2010.10.005

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  10 in total

1.  Changes in levels of parental distress after their child with atypical genitalia undergoes genitoplasty.

Authors:  Cortney Wolfe-Christensen; Amy B Wisniewski; Alexandria J Mullins; Kristy J Reyes; Paul Austin; Laurence Baskin; Kerlly Bernabé; Earl Cheng; Allyson Fried; Dominic Frimberger; Denise Galan; Lynette Gonzalez; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Natalie J Nokoff; Blake Palmer; Dix Poppas; Alethea Paradis; Elizabeth Yerkes; Larry L Mullins
Journal:  J Pediatr Urol       Date:  2016-12-14       Impact factor: 1.830

Review 2.  Psychosocial implications of disorders of sex development treatment for parents.

Authors:  Amy B Wisniewski
Journal:  Curr Opin Urol       Date:  2017-01       Impact factor: 2.309

3.  Uncertainty and Posttraumatic Stress: Differences Between Mothers and Fathers of Infants with Disorders of Sex Development.

Authors:  Alexandria M Delozier; Kaitlyn L Gamwell; Christina Sharkey; Dana M Bakula; Megan N Perez; Cortney Wolfe-Christensen; Paul Austin; Laurence Baskin; Kerlly J Bernabé; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Rebecca E H Ellens; Allyson Fried; Denise Galan; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Natalie J Nokoff; Kristy J Reyes; Blake Palmer; Dix P Poppas; Alethea Paradis; Amy C Tishelman; Elizabeth B Yerkes; John M Chaney; Amy B Wisniewski; Larry L Mullins
Journal:  Arch Sex Behav       Date:  2019-05-29

4.  Comparison of Family Life Quality in Type 1 Diabetic and Healthy Children from the Perception of their Mothers.

Authors:  Maryam Hashemipour-Zavareh; Zahra Yousofi; Mahin Hashemipour
Journal:  Int J Prev Med       Date:  2020-09-10

5.  Differences in adjustment by child developmental stage among caregivers of children with disorders of sex development.

Authors:  Stephanie E Hullmann; David A Fedele; Cortney Wolfe-Christensen; Larry L Mullins; Amy B Wisniewski
Journal:  Int J Pediatr Endocrinol       Date:  2011-11-10

6.  Children with disorders of sex development: A qualitative study of early parental experience.

Authors:  Halley P Crissman; Lauren Warner; Melissa Gardner; Meagan Carr; Aileen Schast; Alexandra L Quittner; Barry Kogan; David E Sandberg
Journal:  Int J Pediatr Endocrinol       Date:  2011-10-12

7.  Predictors of Psychosocial Distress in Parents of Young Children with Disorders of Sex Development.

Authors:  Megan N Perez; Alexandria M Delozier; Christopher E Aston; Paul Austin; Laurence Baskin; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Allyson Fried; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Natalie Nokoff; Blake Palmer; Alethea Paradis; Dix Poppas; Kristy J Scott Reyes; Jonathan M Swartz; Amy Tishelman; Amy B Wisniewski; Cortney Wolfe-Christensen; Elizabeth Yerkes; Larry L Mullins
Journal:  J Urol       Date:  2019-10-09       Impact factor: 7.600

8.  Health related quality of life of children and adolescents with congenital adrenal hyperplasia in Brazil.

Authors:  Daniel Luis Schueftan Gilban; Paulo Alonso Garcia Alves Junior; Izabel Calland Ricarte Beserra
Journal:  Health Qual Life Outcomes       Date:  2014-08-13       Impact factor: 3.186

9.  Parental Reports of Stigma Associated with Child's Disorder of Sex Development.

Authors:  Aimee M Rolston; Melissa Gardner; Eric Vilain; David E Sandberg
Journal:  Int J Endocrinol       Date:  2015-03-31       Impact factor: 3.257

Review 10.  Gender Development in 46,XY DSD: Influences of Chromosomes, Hormones, and Interactions with Parents and Healthcare Professionals.

Authors:  Amy B Wisniewski
Journal:  Scientifica (Cairo)       Date:  2012-09-19
  10 in total

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