Janice Phillips1, Marlene Z Cohen. 1. Center for Clinical Cancer Genetics and Global Health, University of Chicago Medical Center, Chicago, IL, USA. Janice.phillips@att.net
Abstract
PURPOSE: To describe African American women's experience of being at high risk for breast cancer. DESIGN: A hermeneutic phenomenological approach was used to guide in-depth interviews and analysis. Methods to ensure trustworthiness and rigor were included. METHODS: Open interviews were conducted with 20 African American women who were at high risk for breast cancer (family history, personal history, genetic mutation). They were recruited from a cancer risk clinic and community-based settings. Data were transcribed verbatim, and themes were labeled among and between all interviews. FINDINGS: Five themes were identified: (a) life-changing experience; (b) relationships: fears, support, and concerns; (c) the healthcare experience; (d) raising awareness; and (e) strong faith. CONCLUSIONS: Young women at high risk for breast cancer have unique emotional and support needs that are shaped by stage in life, relationships with significant others, their faith, and interactions with the healthcare delivery system. CLINICAL RELEVANCE: Breast cancer does occur in young women. This highlights the need for timely and sensitive approaches to care when young women present with breast health concerns or abnormal breast findings.
PURPOSE: To describe African American women's experience of being at high risk for breast cancer. DESIGN: A hermeneutic phenomenological approach was used to guide in-depth interviews and analysis. Methods to ensure trustworthiness and rigor were included. METHODS: Open interviews were conducted with 20 African American women who were at high risk for breast cancer (family history, personal history, genetic mutation). They were recruited from a cancer risk clinic and community-based settings. Data were transcribed verbatim, and themes were labeled among and between all interviews. FINDINGS: Five themes were identified: (a) life-changing experience; (b) relationships: fears, support, and concerns; (c) the healthcare experience; (d) raising awareness; and (e) strong faith. CONCLUSIONS: Young women at high risk for breast cancer have unique emotional and support needs that are shaped by stage in life, relationships with significant others, their faith, and interactions with the healthcare delivery system. CLINICAL RELEVANCE: Breast cancer does occur in young women. This highlights the need for timely and sensitive approaches to care when young women present with breast health concerns or abnormal breast findings.
Authors: Lydia P Buki; D Marcela Garcés; M Carolina Hinestrosa; Lori Kogan; Iris Y Carrillo; Bryana French Journal: Cultur Divers Ethnic Minor Psychol Date: 2008-04
Authors: Delia Smith West; Paul G Greene; Polly P Kratt; Leavonne Pulley; Heidi L Weiss; Nicole Siegfried; Stacy A Gore Journal: J Womens Health (Larchmt) Date: 2003-10 Impact factor: 2.681