Literature DB >> 21858718

Informational and decisional empowerment in online health support communities: initial psychometric validation of the Cyber Info-Decisional Empowerment Scale (CIDES) and preliminary data from administration of the scale.

Gül Seçkin1.   

Abstract

PURPOSE: This article presents initial psychometric validation of an instrument developed to measure cyber informational and decisional empowerment. The article provides preliminary insights into the extent to which cyber patients view the digital environment of peer-based information and support as a resource for informed and empowered participation in self health care management.
METHODS: Data come from cancer patients (N = 350) who participated in the Study of Virtual Health Networks for Cancer Patients of the 21st Century. Data were first analyzed using exploratory factor analysis with principle component extraction and Varimax rotation. Age-based split-sample analysis (≥ 51 and ≤ 50) was performed on a subsample, which consisted of only women (N = 255), in order to cross-validate psychometric data obtained from the full sample. A confirmatory factor analysis was conducted using AMOS 19.0. to further validate the scale.
RESULTS: The composite scale is unidimensional with excellent internal consistency reliability. The highest average scores were obtained for informational empowerment items. The lowest average was for the item that measured empowerment to seek second opinion from additional health care professionals.
CONCLUSIONS: The ability of this composite measure to provide information about the extent to which computer-connected patients view digital peer support as an empowerment tool makes it a valuable addition to the literature in health informatics, supportive cancer care, and health quality of life research.

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Year:  2011        PMID: 21858718     DOI: 10.1007/s00520-011-1249-y

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  10 in total

1.  Changes in female support network systems and adaptation after breast cancer diagnosis: differences between older and younger patients.

Authors:  Sato Ashida; Aunchalee E L Palmquist; Karen Basen-Engquist; S Eva Singletary; Laura M Koehly
Journal:  Gerontologist       Date:  2009-05-22

2.  Use of and satisfaction with sources of health information among older Internet users and nonusers.

Authors:  Jessica Taha; Joseph Sharit; Sara Czaja
Journal:  Gerontologist       Date:  2009-09-09

3.  Seniors' online communities: a quantitative content analysis.

Authors:  Galit Nimrod
Journal:  Gerontologist       Date:  2009-11-16

4.  Exemplary care as a mediator of the effects of caregiver subjective appraisal and emotional outcomes.

Authors:  Grant M Harris; Daniel W Durkin; Rebecca S Allen; Jamie DeCoster; Louis D Burgio
Journal:  Gerontologist       Date:  2011-02-24

5.  Health group therapy. Why so many patients are sharing their medical data online.

Authors:  Bonnie Rochman
Journal:  Time       Date:  2010-02-08

6.  Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook.

Authors:  Jeremy A Greene; Niteesh K Choudhry; Elaine Kilabuk; William H Shrank
Journal:  J Gen Intern Med       Date:  2010-10-13       Impact factor: 5.128

7.  Internet breast health information use and coping among women with breast cancer.

Authors:  Joshua Fogel
Journal:  Cyberpsychol Behav       Date:  2004-02

8.  Use of information resources by patients with cancer and their companions.

Authors:  Ethan M Basch; Howard T Thaler; Weiji Shi; Sofia Yakren; Deborah Schrag
Journal:  Cancer       Date:  2004-06-01       Impact factor: 6.860

9.  Cancer patients' self-reported attitudes about the Internet.

Authors:  Sheryl P LaCoursiere; M Tish Knobf; Ruth McCorkle
Journal:  J Med Internet Res       Date:  2005-07-01       Impact factor: 5.428

10.  A new age for cancer information seeking: are we better off now?

Authors:  Paul R Helft
Journal:  J Gen Intern Med       Date:  2008-03       Impact factor: 5.128

  10 in total
  5 in total

Review 1.  Assessment of patient empowerment--a systematic review of measures.

Authors:  Paul J Barr; Isabelle Scholl; Paulina Bravo; Marjan J Faber; Glyn Elwyn; Marion McAllister
Journal:  PLoS One       Date:  2015-05-13       Impact factor: 3.240

2.  Being an Informed Consumer of Health Information and Assessment of Electronic Health Literacy in a National Sample of Internet Users: Validity and Reliability of the e-HLS Instrument.

Authors:  Gül Seçkin; Dale Yeatts; Susan Hughes; Cassie Hudson; Valarie Bell
Journal:  J Med Internet Res       Date:  2016-07-11       Impact factor: 5.428

Review 3.  Online Communities as a Driver for Patient Empowerment: Systematic Review.

Authors:  Victoria Johansson; Anna Sigridur Islind; Tomas Lindroth; Eva Angenete; Martin Gellerstedt
Journal:  J Med Internet Res       Date:  2021-02-09       Impact factor: 5.428

4.  Health information on the web and consumers' perspectives on health professionals' responses to information exchange.

Authors:  Gül Seçkin
Journal:  Med 2 0       Date:  2014-07-08

5.  Ill Literates or Illiterates? Investigating the eHealth Literacy of Users of Online Health Communities.

Authors:  Gregor Petrič; Sara Atanasova; Tanja Kamin
Journal:  J Med Internet Res       Date:  2017-10-04       Impact factor: 5.428

  5 in total

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