Literature DB >> 21853160

Implementing an Interoperable Personal Health Record in Pediatrics: Lessons Learned at an Academic Children's Hospital.

Arash Anoshiravani, Gregory Gaskin, Ed Kopetsky, Christy Sandborg, Christopher A Longhurst.   

Abstract

This paper describes the development of an innovative health information technology creating a bidirectional link between the electronic medical record (EMR) of an academic children's hospital and a commercially available, interoperable personal health record (PHR). The goal of the PHR project has been to empower pediatric patients and their families to play a more active role in understanding, accessing, maintaining, and sharing their personal health information to ultimately improve health outcomes. The most notable challenges proved more operational and cultural than technological. Our experience demonstrates that an interoperable PHR is technically and culturally achievable at a pediatric academic medical center. Recognizing the complex social, cultural, and organizational contexts of these systems is important for overcoming barriers to a successful implementation.

Entities:  

Year:  2011        PMID: 21853160      PMCID: PMC3156478     

Source DB:  PubMed          Journal:  J Particip Med        ISSN: 2152-7202


  18 in total

1.  Your doctor's office or the Internet? Two paths to personal health records.

Authors:  Paul C Tang; Thomas H Lee
Journal:  N Engl J Med       Date:  2009-03-26       Impact factor: 91.245

2.  Tectonic shifts in the health information economy.

Authors:  Kenneth D Mandl; Isaac S Kohane
Journal:  N Engl J Med       Date:  2008-04-17       Impact factor: 91.245

3.  Mychildren's: integration of a personally controlled health record with a tethered patient portal for a pediatric and adolescent population.

Authors:  Fabienne C Bourgeois; Kenneth D Mandl; Danny Shaw; Daisy Flemming; Daniel J Nigrin
Journal:  AMIA Annu Symp Proc       Date:  2009-11-14

4.  Project HealthDesign: rethinking the power and potential of personal health records.

Authors:  Patricia Flatley Brennan; Stephen Downs; Gail Casper
Journal:  J Biomed Inform       Date:  2010-10       Impact factor: 6.317

5.  Improving personal health records for patient-centered care.

Authors:  Shane R Reti; Henry J Feldman; Stephen E Ross; Charles Safran
Journal:  J Am Med Inform Assoc       Date:  2010 Mar-Apr       Impact factor: 4.497

6.  Exploring challenges and potentials of personal health records in diabetes self-management: implementation and initial assessment.

Authors:  Rachel Hess; Cindy L Bryce; Suzanne Paone; Gary Fischer; Kathleen M McTigue; Ellen Olshansky; Susan Zickmund; Katharine Fitzgerald; Linda Siminerio
Journal:  Telemed J E Health       Date:  2007-10       Impact factor: 3.536

7.  PAMFOnline: integrating EHealth with an electronic medical record system.

Authors:  Paul C Tang; William Black; Jenny Buchanan; Charles Y Young; David Hooper; Steven R Lane; Barbara Love; Charlotte Mitchell; Nancy Smith; Jenifer R Turnbull
Journal:  AMIA Annu Symp Proc       Date:  2003

8.  Developing a shared electronic health record for patients and clinicians.

Authors:  Cornelia M Ruland; Haakon Brynhi; Roar Andersen; Tore Bryhni
Journal:  Stud Health Technol Inform       Date:  2008

9.  A patient-controlled journal for an electronic medical record: issues and challenges.

Authors:  Jonathan S Wald; Blackford Middleton; Amy Bloom; Dan Walmsley; Mary Gleason; Elizabeth Nelson; Qi Li; Marianna Epstein; Lynn Volk; David W Bates
Journal:  Stud Health Technol Inform       Date:  2004

10.  A research agenda for personal health records (PHRs).

Authors:  David C Kaelber; Ashish K Jha; Douglas Johnston; Blackford Middleton; David W Bates
Journal:  J Am Med Inform Assoc       Date:  2008-08-28       Impact factor: 4.497

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  5 in total

Review 1.  Legal and regulatory considerations associated with use of patient-generated health data from social media and mobile health (mHealth) devices.

Authors:  C Petersen; P DeMuro
Journal:  Appl Clin Inform       Date:  2015-01-14       Impact factor: 2.342

Review 2.  Paediatric models in motion: requirements for model-based decision support at the bedside.

Authors:  Jeffrey S Barrett
Journal:  Br J Clin Pharmacol       Date:  2015-01       Impact factor: 4.335

3.  Neonatal Informatics: Transforming Neonatal Care Through Translational Bioinformatics.

Authors:  Jonathan P Palma; William E Benitz; Peter Tarczy-Hornoch; Atul J Butte; Christopher A Longhurst
Journal:  Neoreviews       Date:  2012-05-01

4.  Impact of an EMR-Based Daily Patient Update Letter on Communication and Parent Engagement in a Neonatal Intensive Care Unit.

Authors:  Jonathan P Palma; Heather Keller; Margie Godin; Karen Wayman; Ronald S Cohen; William D Rhine; Christopher A Longhurst
Journal:  J Particip Med       Date:  2012-12-31

5.  Understanding of and Barriers to Electronic Health Record Patient Portal Access in a Culturally Diverse Pediatric Population.

Authors:  Daniel J Miklin; Sameera S Vangara; Alan M Delamater; Kenneth W Goodman
Journal:  JMIR Med Inform       Date:  2019-04-26
  5 in total

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