Literature DB >> 21848582

Interpretation and acceptance of the term 'cancer survivor': a United Kingdom-based qualitative study.

N F Khan1, S Harrison, P W Rose, A Ward, J Evans.   

Abstract

The concept of cancer survivorship and the term 'cancer survivor' remains widely interpreted. The aim is to explore the interpretations of the term 'cancer survivor' amongst British people living past a cancer diagnosis. We conducted an in-depth qualitative study of 40 people at least 5 years post-diagnosis of breast, colorectal or prostate cancer. Each interviewee was asked whether they felt they were a cancer survivor and interpretations of the term were explored. The majority of respondents did not endorse the term 'cancer survivor', and there was a wide variation in its interpretation. Those who accepted the term understood survivorship as a factual definition of having had cancer and survived. Most rejected the term because it implied a high risk of death that did not reflect their experience, that it suggested survival from cancer was dependent on personal characteristics, or that it meant they were cured despite the possibility of recurrence. Respondents felt 'cancer survivor' was a label that did not describe their identity or that it implied an advocacy role they did not want to take on. Researchers and policy makers in the UK should consider avoiding the term 'cancer survivor' in favour of descriptive terms when discussing this population.
© 2011 Blackwell Publishing Ltd.

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Year:  2011        PMID: 21848582     DOI: 10.1111/j.1365-2354.2011.01277.x

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  19 in total

Review 1.  Cancer survivorship research in Europe and the United States: where have we been, where are we going, and what can we learn from each other?

Authors:  Julia H Rowland; Erin E Kent; Laura P Forsythe; Jon Håvard Loge; Lars Hjorth; Adam Glaser; Vittorio Mattioli; Sophie D Fosså
Journal:  Cancer       Date:  2013-06-01       Impact factor: 6.860

2.  Defining cancer survivorship: a more transparent approach is needed.

Authors:  Nada F Khan; Peter W Rose; Julie Evans
Journal:  J Cancer Surviv       Date:  2011-09-09       Impact factor: 4.442

3.  "Surviving is not the same as living": cancer and Sobrevivencia in Puerto Rico.

Authors:  Karen E Dyer
Journal:  Soc Sci Med       Date:  2015-02-20       Impact factor: 4.634

4.  The salience of cancer and the "survivor" identity for people who have completed acute cancer treatment: a qualitative study.

Authors:  Katherine Clegg Smith; Ann C Klassen; Kisha I Coa; Susan M Hannum
Journal:  J Cancer Surviv       Date:  2015-10-13       Impact factor: 4.442

Review 5.  Are you a cancer survivor? A review on cancer identity.

Authors:  Sze Yan Cheung; Paul Delfabbro
Journal:  J Cancer Surviv       Date:  2016-02-11       Impact factor: 4.442

Review 6.  Who Is a Cancer Survivor? A Systematic Review of Published Definitions.

Authors:  Chiara Marzorati; Silvia Riva; Gabriella Pravettoni
Journal:  J Cancer Educ       Date:  2017-06       Impact factor: 2.037

7.  Attitudes Toward Cancer and Cancer Patients in an Urban Iranian Population.

Authors:  Shervin Badihian; Eun-Kyung Choi; Im-Ryung Kim; Aidin Parnia; Navid Manouchehri; Negin Badihian; Jila M Tanha; Eliseo Guallar; Juhee Cho
Journal:  Oncologist       Date:  2017-05-30

8.  A Formative Study of Colon Cancer Surveillance Care: Implications for Survivor-Centered Interventions.

Authors:  Katherine Regan Sterba; Jane Zapka; Nancy LaPelle; Kent Armeson; Marvella E Ford
Journal:  J Cancer Educ       Date:  2015-12       Impact factor: 2.037

9.  Adopting a survivor identity after cancer in a peer support context.

Authors:  Bronwyn A Morris; Stephen J Lepore; Bridget Wilson; Morton A Lieberman; Jeff Dunn; Suzanne K Chambers
Journal:  J Cancer Surviv       Date:  2014-04-05       Impact factor: 4.442

10.  After the Psychoeducational Intervention: Turkish Breast Cancer Survivors' Experiences.

Authors:  Figen Şengün İnan; Besti Üstün
Journal:  Eur J Breast Health       Date:  2018-11-05
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