Literature DB >> 21807960

The experience of quality of life for caregivers of people with Alzheimer's disease living in Sardinia, Italy.

Ercole Vellone1, Giovanni Piras, Giulia Venturini, Rosaria Alvaro, Marlene Z Cohen.   

Abstract

PURPOSE: This study explored the meaning of quality of life (QOL) for Sardinian caregivers of people affected with Alzheimer's disease and factors improving and worsening their QOL.
DESIGN: The phenomenological method was used to study 41 Alzheimer's disease caregivers living on the western coast of Sardinia, Italy. Interviews were conducted and analyzed using Cohen, Kahn, and Steeves's approach.
FINDINGS: Extracted themes were the following: unity and cooperation in the family; freedom/independence; having time for themselves; serenity/tranquility; and well-being and health. Caregivers identified factors that they believed worsened or improved their QOL. Family was particularly important for these caregivers. DISCUSSION: This study reinforces previous research about cultural influence on QOL and emphasizes the importance of nurses being culturally sensitive. Since Sardinia is a rural region, these findings may be useful for nurses working with caregivers in other rural settings.

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Mesh:

Year:  2011        PMID: 21807960     DOI: 10.1177/1043659611414199

Source DB:  PubMed          Journal:  J Transcult Nurs        ISSN: 1043-6596            Impact factor:   1.959


  10 in total

1.  Caregiving in Dementia and its Impact on Psychological Functioning and Health-Related Quality of Life: Findings from a Colombian Sample.

Authors:  Jhon Alexander Moreno; Elizabeth Nicholls; Natalia Ojeda; Carlos José De los Reyes-Aragón; Diego Rivera; Juan Carlos Arango-Lasprilla
Journal:  J Cross Cult Gerontol       Date:  2015-12

Review 2.  Instruments measuring the disease-specific quality of life of family carers of people with neurodegenerative diseases: a systematic review.

Authors:  Thomas E Page; Nicolas Farina; Anna Brown; Stephanie Daley; Ann Bowling; Thurstine Basset; Gill Livingston; Martin Knapp; Joanna Murray; Sube Banerjee
Journal:  BMJ Open       Date:  2017-03-29       Impact factor: 2.692

3.  Nursing during the COVID-19 outbreak: A phenomenological study.

Authors:  Paola Arcadi; Valentina Simonetti; Rossella Ambrosca; Giancarlo Cicolini; Silvio Simeone; Gianluca Pucciarelli; Rosaria Alvaro; Ercole Vellone; Angela Durante
Journal:  J Nurs Manag       Date:  2021-01-31       Impact factor: 4.680

4.  What factors have influenced quality of life in people with dementia and their family carers during the COVID-19 pandemic: a qualitative study.

Authors:  Stephanie Daley; Nazire Akarsu; Elise Armsby; Nicolas Farina; Yvonne Feeney; Bethany Fine; Laura Hughes; Joanna Pooley; Naji Tabet; Georgia Towson; Sube Banerjee
Journal:  BMJ Open       Date:  2022-02-10       Impact factor: 2.692

5.  Listening to families with a person with neurodegenerative disease talk about their quality of life: integrating quantitative and qualitative approaches.

Authors:  Alba Aza; María Gómez-Vela; Marta Badia; M Begoña Orgaz; Eva González-Ortega; Isabel Vicario-Molina; Estrella Montes-López
Journal:  Health Qual Life Outcomes       Date:  2022-05-07       Impact factor: 3.077

6.  Effectiveness of home-based, non-exercise interventions for dementia: A systematic review.

Authors:  Davynn Gim Hoon Tan; Belinda Melody Bernadette Boo; Cheyenne Shuen Chong; Megan Michelle Ling-Li Tan; Boon-Seng Wong
Journal:  Front Aging Neurosci       Date:  2022-08-11       Impact factor: 5.702

7.  Seeking the balance between caregiving in dementia, family and employment: study protocol for a mixed methods study in Northern Germany.

Authors:  Lydia Neubert; Hans-Helmut König; Christian Brettschneider
Journal:  BMJ Open       Date:  2018-02-27       Impact factor: 2.692

8.  Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework.

Authors:  Stephanie Daley; Joanna Murray; Nicolas Farina; Thomas E Page; Anna Brown; Thurstine Basset; Gill Livingston; Ann Bowling; Martin Knapp; Sube Banerjee
Journal:  Int J Geriatr Psychiatry       Date:  2018-09-25       Impact factor: 3.485

9.  Characteristics, Burden of Care and Quality of Life of Next of Kin of People with Dementia Attending Farm-Based Day Care in Norway: A Descriptive Cross-Sectional Study.

Authors:  Liv Bjerknes Taranrød; Siren Eriksen; Ingeborg Pedersen; Øyvind Kirkevold
Journal:  J Multidiscip Healthc       Date:  2020-11-02

10.  Covid-19 and the quality of life of people with dementia and their carers-The TFD-C19 study.

Authors:  Stephanie Daley; Nicolas Farina; Laura Hughes; Elise Armsby; Nazire Akarsu; Joanna Pooley; Georgia Towson; Yvonne Feeney; Naji Tabet; Bethany Fine; Sube Banerjee
Journal:  PLoS One       Date:  2022-01-19       Impact factor: 3.240

  10 in total

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