Literature DB >> 21807791

Patient perspective: choosing or developing instruments.

John R Kirwan1, James F Fries, Sarah Hewlett, Richard H Osborne.   

Abstract

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approaches, the PROMISE computer adaptive testing (CAT) system and development of a rheumatoid arthritis-specific questionnaire to measure fatigue; a tentative proposal for a PRO instrument development pathway is also made.

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Mesh：

Year:  2011        PMID： 21807791     DOI： 10.3899/jrheum.110390

Source DB:  PubMed          Journal:  J Rheumatol        ISSN： 0315-162X            Impact factor:   4.666


  11 in total

1.  Development of a Patient-Centered Functional Outcomes Questionnaire in Head and Neck Cancer.

Authors:  Adrian Mendez; Hadi Seikaly; Dean Eurich; Agnieszka Dzioba; Daniel Aalto; Martin Osswald; Jeffrey R Harris; Daniel A O'Connell; Cathy Lazarus; Mark Urken; Ilya Likhterov; Raymond L Chai; Erika Rauscher; Daniel Buchbinder; Devin Okay; Risto-Pekka Happonen; Ilpo Kinnunen; Heikki Irjala; Tero Soukka; Juhani Laine
Journal:  JAMA Otolaryngol Head Neck Surg       Date:  2020-05-01       Impact factor: 6.223

2.  A comparison of telephone and paper self-completed questionnaires of main patient-related outcome measures in patients with ankylosing spondylitis and psoriatic arthritis.

Authors:  Rafael Ariza-Ariza; Blanca Hernández-Cruz; Victoria Navarro-Compán; Christian Leyva Pardo; Xavier Juanola; Federico Navarro-Sarabia
Journal:  Rheumatol Int       Date:  2013-06-21       Impact factor: 2.631

3.  Measuring patient outcomes in chronic heart failure: psychometric properties of the Care-Related Quality of Life survey for Chronic Heart Failure (CaReQoL CHF).

Authors:  Paul van Kessel; Dolf de Boer; Michelle Hendriks; Anne Marie Plass
Journal:  BMC Health Serv Res       Date:  2017-08-07       Impact factor: 2.655

4.  Towards a comprehensive, person-centred assessment of health literacy: translation, cultural adaptation and psychometric test of the Dutch Health Literacy Questionnaire.

Authors:  Jany Rademakers; Geeke Waverijn; Mieke Rijken; Richard Osborne; Monique Heijmans
Journal:  BMC Public Health       Date:  2020-12-02       Impact factor: 3.295

Review 5.  Patient involvement in outcome measures for psoriatic arthritis.

Authors:  William Tillett; Ade Adebajo; Mel Brooke; Willemina Campbell; Laura C Coates; Oliver FitzGerald; Laure Gossec; Philip Helliwell; Sarah Hewlett; Jana James; Patricia Minnock; Aisling Reast; Dennis O'Sullivan; Maarten de Wit; Neil McHugh
Journal:  Curr Rheumatol Rep       Date:  2014-05       Impact factor: 4.592

6.  Development of a new occupational balance-questionnaire: incorporating the perspectives of patients and healthy people in the design of a self-reported occupational balance outcome instrument.

Authors:  Mona Dür; Günter Steiner; Veronika Fialka-Moser; Alexandra Kautzky-Willer; Clemens Dejaco; Birgit Prodinger; Michaela Alexandra Stoffer; Alexa Binder; Josef Smolen; Tanja Alexandra Stamm
Journal:  Health Qual Life Outcomes       Date:  2014-04-05       Impact factor: 3.186

7.  Asking what matters: The relevance and use of patient-reported outcome measures that were developed without patient involvement.

Authors:  Bianca Wiering; Dolf de Boer; Diana Delnoij
Journal:  Health Expect       Date:  2017-07-04       Impact factor: 3.377

8.  Patient involvement in the development of patient-reported outcome measures: The developers' perspective.

Authors:  Bianca Wiering; Dolf de Boer; Diana Delnoij
Journal:  BMC Health Serv Res       Date:  2017-09-08       Impact factor: 2.655

Review 9.  Patient involvement in the development of patient-reported outcome measures: a scoping review.

Authors:  Bianca Wiering; Dolf de Boer; Diana Delnoij
Journal:  Health Expect       Date:  2016-02-18       Impact factor: 3.377

10.  Linking the effect of psoriatic arthritis-related foot involvement to the Leeds Foot Impact Scale using the International Classification for Functioning, Disability and Health: a study to assess content validity.

Authors:  Kate Carter; Caterina Tannous; Steven Walmsley; Keith Rome; Deborah E Turner
Journal:  J Foot Ankle Res       Date:  2020-08-24       Impact factor: 2.303
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