Literature DB >> 21803922

'Nothing about us without us': considerations for research involving young people.

Janet E McDonagh1, Belinda Bateman.   

Abstract

Research development in the adolescent health arena is increasingly called for, given the relative lack of robust data on the health of young people. However, specific issues need to be considered when researching this age group. Such issues include participation of young people in the research process, availability of adolescent-specific data, developmental considerations and the interface between paediatric and adult-orientated healthcare. The aim of this paper is to highlight the importance of participation of young people in research and to discuss the key areas for consideration for practitioners when conducting research involving young people.

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Year:  2011        PMID: 21803922     DOI: 10.1136/adc.2010.197947

Source DB:  PubMed          Journal:  Arch Dis Child Educ Pract Ed        ISSN: 1743-0585            Impact factor:   1.309


  18 in total

1.  Attitudes towards medication use in a general population of adolescents.

Authors:  Ellen S Koster; Eibert R Heerdink; Tjalling W de Vries; Marcel L Bouvy
Journal:  Eur J Pediatr       Date:  2013-11-13       Impact factor: 3.183

2.  Data monitoring committees for pragmatic clinical trials.

Authors:  Susan S Ellenberg; Richard Culbertson; Daniel L Gillen; Steven Goodman; Suzanne Schrandt; Maryan Zirkle
Journal:  Clin Trials       Date:  2015-09-15       Impact factor: 2.486

3.  What Patients Teach Us About Patient Engagement in Research.

Authors:  Laura M Dember
Journal:  Clin J Am Soc Nephrol       Date:  2022-02       Impact factor: 8.237

4.  Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer.

Authors:  Ursula M Sansom-Daly; Lori Wiener; Anne-Sophie Darlington; Hanneke Poort; Abby R Rosenberg; Meaghann S Weaver; Fiona Schulte; Antoinette Anazodo; Celeste Phillips; Louise Sue; Anthony R Herbert; Jennifer W Mack; Toni Lindsay; Holly Evans; Claire E Wakefield
Journal:  PLoS One       Date:  2022-07-08       Impact factor: 3.752

5.  The Health Needs of Young Women: Applying a Feminist Philosophical Lens to Nursing Science and Practice.

Authors:  Candace W Burton
Journal:  ANS Adv Nurs Sci       Date:  2016 Apr-Jun       Impact factor: 1.824

6.  Developing a policy for paediatric biobanks: principles for good practice.

Authors:  Kristien Hens; Carla E Van El; Pascal Borry; Anne Cambon-Thomsen; Martina C Cornel; Francesca Forzano; Anneke Lucassen; Christine Patch; Lisbeth Tranebjaerg; Eric Vermeulen; Elena Salvaterra; Aad Tibben; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2012-06-20       Impact factor: 4.246

7.  The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.

Authors:  Susanna Agren; Bodil Ivarsson; Helén Rönning
Journal:  Nurs Res Pract       Date:  2014-11-06

8.  Co-Creation With TickiT: Designing and Evaluating a Clinical eHealth Platform for Youth.

Authors:  Sandy R Whitehouse; Pei-Yoong Lam; Ellen Balka; Shelagh McLellan; Mariana Deevska; Daniel Penn; Robert Issenman; Mary Paone
Journal:  JMIR Res Protoc       Date:  2013-10-18

Review 9.  Apps and Adolescents: A Systematic Review of Adolescents' Use of Mobile Phone and Tablet Apps That Support Personal Management of Their Chronic or Long-Term Physical Conditions.

Authors:  Rabiya Majeed-Ariss; Eileen Baildam; Malcolm Campbell; Alice Chieng; Debbie Fallon; Andrew Hall; Janet E McDonagh; Simon R Stones; Wendy Thomson; Veronica Swallow
Journal:  J Med Internet Res       Date:  2015-12-23       Impact factor: 5.428

Review 10.  New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions.

Authors:  Allan Colver; Sarah Longwell
Journal:  Arch Dis Child       Date:  2013-08-28       Impact factor: 3.791

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