INTRODUCTION: The Danish Multiple Sclerosis (MS) Registry was established in 1956. CONTENT: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. VALIDITY AND COVERAGE: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.
INTRODUCTION: The Danish Multiple Sclerosis (MS) Registry was established in 1956. CONTENT: The register comprises data on all Danes who had MS in 1949 or who have been diagnosed since. Data on new cases and updated information on persons with an MS diagnosis already notified are continuously collected and classified according to standardized diagnostic criteria. VALIDITY AND COVERAGE: The completeness and validity is high (91% and 94%, respectively). CONCLUSION: In January 2005 the register included data on 20,652 persons with a valid MS diagnosis, of whom 9,377 were alive. The register is the only existing nationwide MS register and covers a period of more than 50 years.
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Authors: Giulio Disanto; Pascal Benkert; Johannes Lorscheider; Stefanie Mueller; Jochen Vehoff; Chiara Zecca; Simon Ramseier; Lutz Achtnichts; Oliver Findling; Krassen Nedeltchev; Ernst-Wilhelm Radue; Till Sprenger; Christoph Stippich; Tobias Derfuss; Jean-François Louvion; Christian P Kamm; Heinrich P Mattle; Christoph Lotter; Renaud Du Pasquier; Myriam Schluep; Caroline Pot; Patrice H Lalive; Özgür Yaldizli; Claudio Gobbi; Ludwig Kappos; Jens Kuhle Journal: PLoS One Date: 2016-03-31 Impact factor: 3.240