BACKGROUND: The objective of this study was to compare three patient-based New York Heart Association assessments with cardiologist assessments in outpatients with congenital cardiac disease. METHODS: Consecutive adult outpatients completed three questionnaires in a random order: a patient-based translation of the New York Heart Association classes, a self-constructed questionnaire based on the New York Heart Association classes, and the Specific Activity Scale. The treating cardiologist assessed the New York Heart Association class on the same day. Patient-cardiologist agreement was assessed by calculating percent agreement and weighted kappa. We also explored the level of agreement for patients without co-morbidity. RESULTS: In all, 86 adults--with a median age of 35.8 years--including 46 women participated. An agreement of 75.6% (weighted kappa is 0.43; probability is smaller than 0.01), 70.6% (weighted kappa is 0.44; probability is smaller than 0.01), and 74.4% (weighted kappa is 0.28; probability is smaller than 0.01) was found between the cardiologist assessment and the patient-based translation, self-constructed questionnaire, and the Specific Activity Scale, respectively. The patient-based translation equally over- and underestimated the New York Heart Association class, whereas the self-constructed questionnaire overestimated and the Specific Activity Scale underestimated the New York Heart Association class. Agreement levels for patients without co-morbidity were higher than agreement levels for the total group. CONCLUSION: The patient-based translation yielded adequate agreement with cardiologist-assessed New York Heart Association class, showed equal over- and underestimation, and was easy to complete. The patient-based translation with the instruction to only consider functional impairments caused by the congenital cardiac defect is recommended in future studies of outpatients with congenital cardiac disease.
BACKGROUND: The objective of this study was to compare three patient-based New York Heart Association assessments with cardiologist assessments in outpatients with congenital cardiac disease. METHODS: Consecutive adult outpatients completed three questionnaires in a random order: a patient-based translation of the New York Heart Association classes, a self-constructed questionnaire based on the New York Heart Association classes, and the Specific Activity Scale. The treating cardiologist assessed the New York Heart Association class on the same day. Patient-cardiologist agreement was assessed by calculating percent agreement and weighted kappa. We also explored the level of agreement for patients without co-morbidity. RESULTS: In all, 86 adults--with a median age of 35.8 years--including 46 women participated. An agreement of 75.6% (weighted kappa is 0.43; probability is smaller than 0.01), 70.6% (weighted kappa is 0.44; probability is smaller than 0.01), and 74.4% (weighted kappa is 0.28; probability is smaller than 0.01) was found between the cardiologist assessment and the patient-based translation, self-constructed questionnaire, and the Specific Activity Scale, respectively. The patient-based translation equally over- and underestimated the New York Heart Association class, whereas the self-constructed questionnaire overestimated and the Specific Activity Scale underestimated the New York Heart Association class. Agreement levels for patients without co-morbidity were higher than agreement levels for the total group. CONCLUSION: The patient-based translation yielded adequate agreement with cardiologist-assessed New York Heart Association class, showed equal over- and underestimation, and was easy to complete. The patient-based translation with the instruction to only consider functional impairments caused by the congenital cardiac defect is recommended in future studies of outpatients with congenital cardiac disease.
Authors: Dirkjan Kauw; Dounya Schoormans; Gertjan Tj Sieswerda; Joost P Van Melle; Hubert W Vliegen; Arie P J Van Dijk; Mariët S Hulsbergen-Zwarts; Marco C Post; Tieneke J Ansink; Barbara J M Mulder; Berto J Bouma; Mark J Schuuring Journal: J Cardiovasc Nurs Date: 2022 Mar-Apr 01 Impact factor: 2.083
Authors: Uday Sandhu; Andrew T Nguyen; John Dornblaser; Andrew Gray; Karen Paladino; Charles A Henrikson; Adrienne H Kovacs; Babak Nazer Journal: J Am Heart Assoc Date: 2022-07-29 Impact factor: 6.106
Authors: Tom H Oreel; Pythia T Nieuwkerk; Iris D Hartog; Justine E Netjes; Alexander B A Vonk; Jorrit Lemkes; Hanneke W M van Laarhoven; Michael Scherer-Rath; José P S Henriques; Frans J Oort; Mirjam A G Sprangers; Mathilde G E Verdam Journal: Qual Life Res Date: 2021-06-22 Impact factor: 4.147