Literature DB >> 21677047

Recruiting end-of-life cancer patients in the Netherlands for a study on suffering and euthanasia requests.

C D M Ruijs1, J Goedhart, A J F M Kerkhof, G van der Wal, B D Onwuteaka-Philipsen.   

Abstract

BACKGROUND: In the Netherlands, GPs performed euthanasia or physician-assisted suicide (EAS) in ∼1 of 10 end-of-life cancer patients in their care. Of all explicit requests for EAS directed at GPs, ∼44% resulted in EAS. However, the suffering of patients who do and do not request EAS has never been studied. An important barrier for such research is the low prevalence of end-of-life cancer patients per practice (on average two/year). We studied whether it is possible to recruit end-of-life cancer patients, following-up for requests for EAS (if any), in an interview study in general practice, whether selection occurred and which were the threats and opportunities to recruitment. Our target was to recruit at least 50 patients.
METHODS: Characteristics of all eligible patients were monitored.
RESULTS: One in every three eligible patients were recruited by 44 GPs in a 3-year inclusion period, resulting in 64 patients in the interview study with follow-up until death. The prevalence of explicit requests for EAS was higher (27%; P = 0.026) in the interview sample, and the presence of a depressed mood according to the GP was lower (5%; P = 0.013) than in the sample with eligible but not participating patients.
CONCLUSIONS: Recruitment of slightly more than the minimal target number of end-of-life cancer patients in this study in general practice was realized. Monitoring of all eligible patients permitted to evaluate the selection which occurred. Recruitment through GPs who were direct professional colleagues of one of the researchers was a positive recruitment factor.

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Year:  2011        PMID: 21677047     DOI: 10.1093/fampra/cmr035

Source DB:  PubMed          Journal:  Fam Pract        ISSN: 0263-2136            Impact factor:   2.267


  6 in total

1.  Unbearable suffering and requests for euthanasia prospectively studied in end-of-life cancer patients in primary care.

Authors:  Cees Dm Ruijs; Gerrit van der Wal; Ad Jfm Kerkhof; Bregje D Onwuteaka-Philipsen
Journal:  BMC Palliat Care       Date:  2014-12-23       Impact factor: 3.234

2.  General Practitioners' Attitudes towards Essential Competencies in End-of-Life Care: A Cross-Sectional Survey.

Authors:  Stéphanie Giezendanner; Corinna Jung; Hans-Ruedi Banderet; Ina Carola Otte; Heike Gudat; Dagmar M Haller; Bernice S Elger; Elisabeth Zemp; Klaus Bally
Journal:  PLoS One       Date:  2017-02-01       Impact factor: 3.240

3.  Towards an assessment instrument for suffering in patients with psychiatric conditions: assessing cognitive validity.

Authors:  Monica Verhofstadt; Kenneth Chambaere; Roeslan Leontjevas; Gjalt-Jorn Ygram Peters
Journal:  BJPsych Open       Date:  2019-04-10

4.  Recruiting general practitioners for palliative care research in primary care: real-life barriers explained.

Authors:  B Leysen; B Van den Eynden; A Janssens; J Wens
Journal:  BMC Fam Pract       Date:  2019-03-05       Impact factor: 2.497

5.  The broad spectrum of unbearable suffering in end-of-life cancer studied in dutch primary care.

Authors:  Cees Dm Ruijs; Ad Jfm Kerkhof; Gerrit van der Wal; Bregje D Onwuteaka-Philipsen
Journal:  BMC Palliat Care       Date:  2012-08-01       Impact factor: 3.234

6.  Symptoms, unbearability and the nature of suffering in terminal cancer patients dying at home: a prospective primary care study.

Authors:  Cees D M Ruijs; Ad J F M Kerkhof; Gerrit van der Wal; Bregje D Onwuteaka-Philipsen
Journal:  BMC Fam Pract       Date:  2013-12-28       Impact factor: 2.497

  6 in total

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