Literature DB >> 21624023

Fathers' contributions to the management of their child's long-term medical condition: a narrative review of the literature.

Veronica Swallow1, Ann Macfadyen, Sheila J Santacroce, Heather Lambert.   

Abstract

CONTEXT: Fathers' contributions to the management of long-term childhood medical conditions are under-represented in the literature; therefore, the full extent of their involvement is poorly understood by practitioners and researchers, so strategies for promoting their involvement have not yet been fully considered.
OBJECTIVE: To review studies of fathers' actual contributions in a wide range of conditions, the potential to optimize their contribution through additional interventions by health professionals and a direction for future research.
DESIGN: Narrative review of the literature.
METHODS: CINAHL, Medline, PsychInfo and ERIC databases were searched electronically between the years 1995-2008. The terms adherence, adjustment, child, chronic, compliance, concordance, condition, coping, disease, father, illness, information, long-term, management/intervention, mother, role, self-care and treatment were searched for separately and in combination. English language papers reporting primary research were selected and supplemented by hand-searching reference lists. Thirty-five papers (arising from 29 studies) met criteria and were selected for narrative review.
RESULTS: Five themes were identified: (i) the impact of long-term conditions on fathers' ability to promote their child's well-being, (ii) factors influencing fathers' involvement in health care, (iii) personal growth/beneficial effects for fathers, (iv) the impact of father's involvement on family functioning and (v) strategies that increase fathers' participation in their child's health care and in research investigating fathers' participation.
CONCLUSIONS: The review suggests that fathers' involvement in children's health care can positively impact on fathers', mothers' and children's well-being and family functioning. A range of strategies are identified to inform the promotion of fathers' contributions and future research investigating their input.
© 2011 Blackwell Publishing Ltd.

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Year:  2011        PMID: 21624023      PMCID: PMC5060611          DOI: 10.1111/j.1369-7625.2011.00674.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  58 in total

1.  The impact of a child's chronic illness on fathers.

Authors:  Ladonna A Goble
Journal:  Issues Compr Pediatr Nurs       Date:  2004 Jul-Sep

2.  Associations of paternal involvement in disease management with maternal and family outcomes in families with children with chronic illness.

Authors:  Leslie Gavin; Tim Wysocki
Journal:  J Pediatr Psychol       Date:  2005-07-07

3.  Fathers' reflections on parenting young children with type 1 diabetes.

Authors:  Susan Sullivan-Bolyai; Rachel Rosenberg; Micaela Bayard
Journal:  MCN Am J Matern Child Nurs       Date:  2006 Jan-Feb       Impact factor: 1.412

4.  Family environment, child behavior, and medical indicators in children with kidney disease.

Authors:  E Soliday; E Kool; M B Lande
Journal:  Child Psychiatry Hum Dev       Date:  2001

5.  Mothers' voice: a qualitative study on feeding children with cerebral palsy.

Authors:  G Sleigh
Journal:  Child Care Health Dev       Date:  2005-07       Impact factor: 2.508

6.  Paternal reactions to a child with epilepsy: uncertainty, coping strategies, and depression.

Authors:  Pei-Fan Mu
Journal:  J Adv Nurs       Date:  2005-02       Impact factor: 3.187

7.  The effect of parental expressed emotion on glycaemic control in children with Type 1 diabetes. Parental expressed emotion and glycaemic control in children.

Authors:  Anne Worrall-Davies; David Owens; Philip Holland; David Haigh
Journal:  J Psychosom Res       Date:  2002-02       Impact factor: 3.006

8.  Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases.

Authors:  Tim Wysocki; Leslie Gavin
Journal:  J Pediatr Psychol       Date:  2004 Apr-May

9.  Fathers' perspectives on the treatment for pediatric hematology: extending the findings.

Authors:  Pam McGrath; Mark Chesler
Journal:  Issues Compr Pediatr Nurs       Date:  2004 Jan-Mar

Review 10.  Common adaptive tasks facing parents of children with chronic conditions.

Authors:  C Canam
Journal:  J Adv Nurs       Date:  1993-01       Impact factor: 3.187

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  23 in total

1.  The implications of patients and carers as active agents in health care and the consequences for their own health, the health of their families and health system.

Authors:  Jonathan Tritter
Journal:  Health Expect       Date:  2012-06       Impact factor: 3.377

2.  Delimiting family in syntheses of research on childhood chronic conditions and family life.

Authors:  Kathleen Knafl; Jennifer Leeman; Nancy Havill; Jamie Crandell; Margarete Sandelowski
Journal:  Fam Process       Date:  2014-09-26

Review 3.  Good cop, bad cop: quality of parental involvement in type 1 diabetes management in youth.

Authors:  Mackenzie T Young; Jadienne H Lord; Niral J Patel; Meredith A Gruhn; Sarah S Jaser
Journal:  Curr Diab Rep       Date:  2014       Impact factor: 4.810

4.  Fathers' psychological responses to pediatric cancer-induced financial distress.

Authors:  Sheila Judge Santacroce; Mary K Killela; Gavin Kerr; Jill A Leckey; Shawn M Kneipp
Journal:  Pediatr Blood Cancer       Date:  2020-04-11       Impact factor: 3.167

5.  Short-Term Natural Course of Depressive Symptoms and Family-Related Stress in Adolescents After Separation From Father.

Authors:  Gabriella Gobbi; Nancy C P Low; Erika Dugas; Marie-Pierre Sylvestre; Gisèle Contreras; Jennifer O'Loughlin
Journal:  Can J Psychiatry       Date:  2015-10       Impact factor: 4.356

Review 6.  Parents' experiences of living with a child with a long-term condition: a rapid structured review of the literature.

Authors:  Joanna Smith; Francine Cheater; Hilary Bekker
Journal:  Health Expect       Date:  2013-01-14       Impact factor: 3.377

7.  Risk and resistance factors associated with paternal adjustment to obstetrical brachial plexus injuries.

Authors:  Louise A McLean; David Harvey; Keith Mutimer
Journal:  J Clin Psychol Med Settings       Date:  2014-09

8.  Effects of a Cognitive Behavioral Therapy Intervention Trial to Improve Disease Outcomes in Children with Inflammatory Bowel Disease.

Authors:  Rona L Levy; Miranda A L van Tilburg; Shelby L Langer; Joan M Romano; Lynn S Walker; Lloyd A Mancl; Tasha B Murphy; Robyn L Claar; Shara I Feld; Dennis L Christie; Bisher Abdullah; Melissa M DuPen; Kimberly S Swanson; Melissa D Baker; Susan A Stoner; William E Whitehead
Journal:  Inflamm Bowel Dis       Date:  2016-09       Impact factor: 5.325

9.  Primary and Secondary Caregiver Reports of Quality of Life in Pediatric Asthma: Are They Comparable?

Authors:  Robin S Everhart; Jessica L Greenlee; Marcia A Winter; Barbara H Fiese
Journal:  Appl Res Qual Life       Date:  2017-03-21

10.  Fathers of Children With Congenital Heart Disease: Sources of Stress and Opportunities for Intervention.

Authors:  Michael F Hoffman; Allison Karpyn; Jennifer Christofferson; Trent Neely; Linda G McWhorter; Abigail C Demianczyk; Richard James Mslis; Jason Hafer; Anne E Kazak; Erica Sood
Journal:  Pediatr Crit Care Med       Date:  2020-11       Impact factor: 3.971

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