Literature DB >> 21613647

Justification for a home-based education programme for kidney patients and their social network prior to initiation of renal replacement therapy.

Emma K Massey1, Medard T Hilhorst, Robert W Nette, Peter J H Smak Gregoor, Marinus A van den Dorpel, Anthony C van Kooij, Willij C Zuidema, R Zietse, Jan J V Busschbach, Willem Weimar.   

Abstract

In this article, an ethical analysis of an educational programme on renal replacement therapy options for patients and their social network is presented. The two main spearheads of this approach are: (1) offering an educational programme on all renal replacement therapy options ahead of treatment requirement and (2) a home-based approach involving the family and friends of the patient. Arguments are offered for the ethical justification of this approach by considering the viewpoint of the various stakeholders involved. Finally, reflecting on these ethical considerations, essential conditions for carrying out such a programme are outlined. The goal is to develop an ethically justified and responsible educational programme.

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Year:  2011        PMID: 21613647     DOI: 10.1136/jme.2011.042366

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  4 in total

1.  The "House Calls" trial: a randomized controlled trial to reduce racial disparities in live donor kidney transplantation: rationale and design.

Authors:  James R Rodrigue; Martha Pavlakis; Ogo Egbuna; Matthew Paek; Amy D Waterman; Didier A Mandelbrot
Journal:  Contemp Clin Trials       Date:  2012-04-03       Impact factor: 2.226

2.  Implementation of the kidney team at home intervention: Evaluating generalizability, implementation process, and effects.

Authors:  Steef Redeker; Emma K Massey; Charlotte Boonstra; Jan J van Busschbach; Reinier Timman; Harald F H Brulez; Daan A A M J Hollander; Luuk B Hilbrands; Frederike Bemelman; Stefan P Berger; Jacqueline van de Wetering; René M A van den Dorpel; Margriet Dekker-Jansen; Willem Weimar; Sohal Y Ismail
Journal:  Transpl Int       Date:  2021-09-21       Impact factor: 3.842

3.  Multisystemic engagement and nephrology based educational intervention: a randomized controlled trial protocol on the KidneyTteam At Home study.

Authors:  Sohal Y Ismail; Annemarie E Luchtenburg; Willij C Zuidema; Charlotte Boonstra; Willem Weimar; Emma K Massey; Jan J Busschbach
Journal:  BMC Nephrol       Date:  2012-07-23       Impact factor: 2.388

4.  Cost-effectiveness of a home-based group educational programme on renal replacement therapies: a study protocol.

Authors:  Steef Redeker; Mark Oppe; Martijn Visser; Jan J V Busschbach; Willem Weimar; Emma Massey; Sohal Ismail
Journal:  BMJ Open       Date:  2019-03-23       Impact factor: 2.692

  4 in total

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