Literature DB >> 21573739

Suffering and euthanasia: a qualitative study of dying cancer patients' perspectives.

Marit Karlsson1, Anna Milberg, Peter Strang.   

Abstract

PURPOSE: Although intolerable suffering is a core concept used to justify euthanasia, little is known about dying cancer patients' own interpretations and conclusions of suffering in relation to euthanasia.
METHODS: Sixty-six patients with cancer in a palliative phase were selected through maximum-variation sampling, and in-depth interviews were conducted on suffering and euthanasia. The interviews were analyzed using qualitative content analysis with no predetermined categories.
RESULTS: The analysis demonstrated patients' different perspectives on suffering in connection to their attitude to euthanasia. Those advocating euthanasia, though not for themselves at the time of the study, did so due to (1) perceptions of suffering as meaningless, (2) anticipatory fears of losses and multi-dimensional suffering, or (3) doubts over the possibility of receiving help to alleviate suffering. Those opposing euthanasia did so due to (1) perceptions of life, despite suffering, as being meaningful, (2) trust in bodily or psychological adaptation to reduce suffering, a phenomenon personally experienced by informants, and (3) by placing trust in the provision of help and support by healthcare services to reduce future suffering.
CONCLUSIONS: Dying cancer patients draw varying conclusions from suffering: suffering can, but does not necessarily, lead to advocations of euthanasia. Patients experiencing meaning and trust, and who find strategies to handle suffering, oppose euthanasia. In contrast, patients with anticipatory fears of multi-dimensional meaningless suffering and with lack of belief in the continuing availability of help, advocate euthanasia. This indicates a need for healthcare staff to address issues of trust, meaning, and anticipatory fears.

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Year:  2011        PMID: 21573739     DOI: 10.1007/s00520-011-1186-9

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  30 in total

Review 1.  Patients' voices are needed in debates on euthanasia.

Authors:  Yvonne Y W Mak; Glyn Elwyn; Ilora G Finlay
Journal:  BMJ       Date:  2003-07-26

Review 2.  Nursing and euthanasia: a review of argument-based ethics literature.

Authors:  Toon Quaghebeur; Bernadette Dierckx de Casterlé; Chris Gastmans
Journal:  Nurs Ethics       Date:  2009-07       Impact factor: 2.874

3.  Judgment of unbearable suffering and willingness to grant a euthanasia request by Dutch general practitioners.

Authors:  Donald van Tol; Judith Rietjens; Agnes van der Heide
Journal:  Health Policy       Date:  2010-05-21       Impact factor: 2.980

4.  Granted, undecided, withdrawn, and refused requests for euthanasia and physician-assisted suicide.

Authors:  Marijke C Jansen-van der Weide; Bregje D Onwuteaka-Philipsen; Gerrit van der Wal
Journal:  Arch Intern Med       Date:  2005 Aug 8-22

Review 5.  Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: a systematic review.

Authors:  Peter L Hudson; Linda J Kristjanson; Michael Ashby; Brian Kelly; Penelope Schofield; Rosalie Hudson; Sanchia Aranda; Margaret O'Connor; Annette Street
Journal:  Palliat Med       Date:  2006-10       Impact factor: 4.762

6.  Existential loneliness in a palliative home care setting.

Authors:  Lisa Sand; Peter Strang
Journal:  J Palliat Med       Date:  2006-12       Impact factor: 2.947

7.  Attitudes of terminally ill patients toward euthanasia and physician-assisted suicide.

Authors:  K G Wilson; J F Scott; I D Graham; J F Kozak; S Chater; R A Viola; B J de Faye; L A Weaver; D Curran
Journal:  Arch Intern Med       Date:  2000-09-11

Review 8.  Unbearable suffering of patients with a request for euthanasia or physician-assisted suicide: an integrative review.

Authors:  Marianne Dees; Myrra Vernooij-Dassen; Wim Dekkers; Chris van Weel
Journal:  Psychooncology       Date:  2010-04       Impact factor: 3.894

9.  Pathways to distress: the multiple determinants of depression, hopelessness, and the desire for hastened death in metastatic cancer patients.

Authors:  Gary Rodin; Christopher Lo; Mario Mikulincer; Allan Donner; Lucia Gagliese; Camilla Zimmermann
Journal:  Soc Sci Med       Date:  2008-12-07       Impact factor: 4.634

10.  Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians.

Authors:  H R W Pasman; M L Rurup; D L Willems; B D Onwuteaka-Philipsen
Journal:  BMJ       Date:  2009-11-16
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  6 in total

1.  A good death from the perspective of palliative cancer patients.

Authors:  Lisa Kastbom; Anna Milberg; Marit Karlsson
Journal:  Support Care Cancer       Date:  2016-11-12       Impact factor: 3.603

2.  Euthanasia requests, procedures and outcomes for 100 Belgian patients suffering from psychiatric disorders: a retrospective, descriptive study.

Authors:  Lieve Thienpont; Monica Verhofstadt; Tony Van Loon; Wim Distelmans; Kurt Audenaert; Peter P De Deyn
Journal:  BMJ Open       Date:  2015-07-27       Impact factor: 2.692

3.  Suffering and dying well: on the proper aim of palliative care.

Authors:  Govert den Hartogh
Journal:  Med Health Care Philos       Date:  2017-09

4.  Towards an assessment instrument for suffering in patients with psychiatric conditions: assessing cognitive validity.

Authors:  Monica Verhofstadt; Kenneth Chambaere; Roeslan Leontjevas; Gjalt-Jorn Ygram Peters
Journal:  BJPsych Open       Date:  2019-04-10

5.  Right to Life or Right to Die in Advanced Dementia: Physician-Assisted Dying.

Authors:  Jitender Jakhar; Saaniya Ambreen; Shiv Prasad
Journal:  Front Psychiatry       Date:  2021-01-21       Impact factor: 4.157

6.  Patient perspectives on advance euthanasia directives in Huntington's disease. A qualitative interview study.

Authors:  Marina R Ekkel; Marja F I A Depla; Els M L Verschuur; Ruth B Veenhuizen; Cees M P M Hertogh; Bregje D Onwuteaka-Philipsen
Journal:  BMC Med Ethics       Date:  2022-10-10       Impact factor: 2.834

  6 in total

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