Terence V McCann1, Dan I Lubman, Eileen Clark. 1. School of Nursing and Midwifery, Victoria University, Melbourne, Victoria 8001, Australia. terence.mccann@vu.edu.au
Abstract
OBJECTIVE: This study explored how caregivers of young adults who had experienced a first episode of psychosis coped with stigma while maintaining their caregiving role. METHODS: Qualitative interviews were undertaken with 20 caregivers in Melbourne, Australia. RESULTS: Some caregivers adopted an open approach about disclosing their young person's illness. Alternatively, some were secretive about the illness, because of fears of and experiences with stigmatization if others found out. Caregivers also suggested ways to minimize the stigma that intensified their burden of care. CONCLUSIONS: The findings showed the kinds of roles that family members and others have in supporting caregivers. Caregivers who were secretive about their situation were particularly vulnerable to feeling burdened and needed additional support from clinicians. Caregivers need increased support to enable them to better cope with and respond to stigma.
OBJECTIVE: This study explored how caregivers of young adults who had experienced a first episode of psychosis coped with stigma while maintaining their caregiving role. METHODS: Qualitative interviews were undertaken with 20 caregivers in Melbourne, Australia. RESULTS: Some caregivers adopted an open approach about disclosing their young person's illness. Alternatively, some were secretive about the illness, because of fears of and experiences with stigmatization if others found out. Caregivers also suggested ways to minimize the stigma that intensified their burden of care. CONCLUSIONS: The findings showed the kinds of roles that family members and others have in supporting caregivers. Caregivers who were secretive about their situation were particularly vulnerable to feeling burdened and needed additional support from clinicians. Caregivers need increased support to enable them to better cope with and respond to stigma.