Literature DB >> 21525798

Disorders of sex development-when and how to tell the patient.

Juliana Austin1, Anne Tamar-Mattis, Tom Mazur, Maria J Henwood, Wilma C Rossi.   

Abstract

Physicians and other providers are often confronted with difficult decisions in the area of disclosure. This article examines a hypothetical situation relevant to the practice of pediatric endocrinology. The parents of a child with a disorder of sex development (DSD) wish the physician to treat their child, but without revealing key medical information to the child. Herein, we will explore the legal and ethical responsibilities of a provider to disclose information to an under-age DSD patient and to provide insight on when and how to tell the patient.

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Year:  2011        PMID: 21525798

Source DB:  PubMed          Journal:  Pediatr Endocrinol Rev        ISSN: 1565-4753


  6 in total

1.  Utilization of health care services and satisfaction with care in adults affected by disorders of sex development (DSD).

Authors:  Ute Thyen; Anke Lux; Martina Jürgensen; Olaf Hiort; Birgit Köhler
Journal:  J Gen Intern Med       Date:  2014-08       Impact factor: 5.128

2.  The impact of culture on disclosure in differences of sex development.

Authors:  Erica M Weidler; Karen E Peterson
Journal:  Semin Pediatr Surg       Date:  2019-09-13       Impact factor: 2.754

Review 3.  Clinical management in mixed gonadal dysgenesis with chromosomal mosaicism: Considerations in newborns and adolescents.

Authors:  Erica M Weidler; Margaret Pearson; Kathleen van Leeuwen; Erin Garvey
Journal:  Semin Pediatr Surg       Date:  2019-09-19       Impact factor: 2.754

Review 4.  Congenital Adrenal Hyperplasia-Current Insights in Pathophysiology, Diagnostics, and Management.

Authors:  Hedi L Claahsen-van der Grinten; Phyllis W Speiser; S Faisal Ahmed; Wiebke Arlt; Richard J Auchus; Henrik Falhammar; Christa E Flück; Leonardo Guasti; Angela Huebner; Barbara B M Kortmann; Nils Krone; Deborah P Merke; Walter L Miller; Anna Nordenström; Nicole Reisch; David E Sandberg; Nike M M L Stikkelbroeck; Philippe Touraine; Agustini Utari; Stefan A Wudy; Perrin C White
Journal:  Endocr Rev       Date:  2022-01-12       Impact factor: 19.871

5.  To tell or not: parental thoughts on disclosure of urologic surgery to their child.

Authors:  Christina B Ching; Douglass B Clayton; John C Thomas; John C Pope; Mark C Adams; John W Brock; Stacy T Tanaka
Journal:  Int Braz J Urol       Date:  2015 May-Jun       Impact factor: 1.541

Review 6.  Caring for individuals with a difference of sex development (DSD): a Consensus Statement.

Authors:  Martine Cools; Anna Nordenström; Ralitsa Robeva; Joanne Hall; Puck Westerveld; Christa Flück; Birgit Köhler; Marta Berra; Alexander Springer; Katinka Schweizer; Vickie Pasterski
Journal:  Nat Rev Endocrinol       Date:  2018-07       Impact factor: 43.330

  6 in total

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