Literature DB >> 21523751

Awareness and advocacy for adolescents and young adults with cancer.

Devon McGoldrick1, Pamela Gordon, Myrna Whiteson, Heidi Adams, Paul Rogers, Simon Sutcliffe.   

Abstract

Increasing the awareness of the clinical and psychosocial needs that are particular to adolescents and young adults (AYA) was a top priority, as was strengthening advocacy efforts to empower and support this group. To date, AYA advocates had some success in generating public awareness and building a solid clinical justification for increased focus on this population. It had been established that the economic burden of their mortality was significant, their cancers were unusual, their medical care was often inadequate, and their outcomes for many cancers had not improved in the past 3 decades. As the awareness and advocacy campaign continued to grow and evolve across the globe, it was an important goal to integrate the efforts of all stakeholders to ensure that it progressed with a single, consensual, focused message identifying a common priority for action. By coordinating the efforts of the scientific, medical, and advocacy communities, it was possible to amplify their separate efforts and activities and more efficiently achieve large-scale change in the world of AYA oncology.
© 2011 American Cancer Society

Entities:  

Mesh:

Year:  2011        PMID: 21523751     DOI: 10.1002/cncr.26055

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  5 in total

1.  Outcome and molecular characteristics of adolescent and young adult patients with newly diagnosed primary glioblastoma: a study of the Society of Austrian Neurooncology (SANO).

Authors:  Annette Leibetseder; Michael Ackerl; Birgit Flechl; Adelheid Wöhrer; Georg Widhalm; Karin Dieckmann; Sabine-Spiegl Kreinecker; Josef Pichler; Johannes Hainfellner; Matthias Preusser; Christine Marosi
Journal:  Neuro Oncol       Date:  2012-12-07       Impact factor: 12.300

2.  Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult-Aged Cancer Patients and Survivors.

Authors:  Conrad Fernandez; Graeme A M Fraser; Carolyn Freeman; Eva Grunfeld; Abha Gupta; Leslie Stephen Mery; Sonja De Pauw; Brent Schacter
Journal:  J Adolesc Young Adult Oncol       Date:  2011-04       Impact factor: 2.223

3.  The global burden of adolescent and young adult cancer in 2019: a systematic analysis for the Global Burden of Disease Study 2019.

Authors: 
Journal:  Lancet Oncol       Date:  2021-12-03       Impact factor: 54.433

4.  International Framework for Cancer Patient Advocacy: Empowering Organizations and Patients to Create a National Call to Action on Cancer.

Authors:  Rebekkah M Schear; Leigh Manasco; Devon McGoldrick; Kiti Kajana; Lauren Rosenthal; Ann McMikel; Nancy Lins
Journal:  J Glob Oncol       Date:  2015-10-28

5.  Exploring the feasibility and acceptability of a mixed-methods pilot randomized controlled trial testing a 12-week physical activity intervention with adolescent and young adult cancer survivors.

Authors:  Amanda Wurz; Jennifer Brunet
Journal:  Pilot Feasibility Stud       Date:  2019-12-20
  5 in total

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