Literature DB >> 21518349

Why it is crucial to involve families in all stages of childhood disability research.

Christopher Morris, Val Shilling, Camilla McHugh, Katrina Wyatt.   

Abstract

Mesh：

Year:  2011        PMID： 21518349     DOI： 10.1111/j.1469-8749.2011.03984.x

Source DB:  PubMed          Journal:  Dev Med Child Neurol        ISSN： 0012-1622            Impact factor:   5.449


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  16 in total

1.  Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership.

Authors:  Christopher Morris; Doug Simkiss; Mary Busk; Maureen Morris; Amanda Allard; Jacob Denness; Astrid Janssens; Anna Stimson; Joanna Coghill; Kelly Robinson; Mark Fenton; Katherine Cowan
Journal:  BMJ Open       Date:  2015-01-28       Impact factor: 2.692

2.  Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.

Authors:  Christopher Morris; Astrid Janssens; Valerie Shilling; Amanda Allard; Andrew Fellowes; Richard Tomlinson; Jane Williams; Jo Thompson Coon; Morwenna Rogers; Bryony Beresford; Colin Green; Crispin Jenkinson; Alan Tennant; Stuart Logan
Journal:  Health Qual Life Outcomes       Date:  2015-06-25       Impact factor: 3.186

3.  Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability.

Authors:  Dianne J Russell; Jennifer Sprung; Dayle McCauley; Olaf Kraus de Camargo; Francine Buchanan; Roman Gulko; Rachel Martens; Jan Willem Gorter
Journal:  J Med Internet Res       Date:  2016-11-11       Impact factor: 5.428

Review 4.  Core Health Outcomes In Childhood Epilepsy (CHOICE): protocol for the selection of a core outcome set.

Authors:  Christopher Morris; Colin Dunkley; Frances M Gibbon; Janet Currier; Deborah Roberts; Morwenna Rogers; Holly Crudgington; Lucy Bray; Bernie Carter; Dyfrig Hughes; Catrin Tudur Smith; Paula R Williamson; Paul Gringras; Deb K Pal
Journal:  Trials       Date:  2017-11-28       Impact factor: 2.279

5.  Parents' Assessment of Disability in Their Children With Down Syndrome.

Authors:  Guðrun Jákupsdóttir Egholm; Margrethe Bjerknes; Niels Ove Illum
Journal:  Child Neurol Open       Date:  2020-06-18

6.  Designing a tool to support patient and public involvement in research projects: the Involvement Matrix.

Authors:  Dirk-Wouter Smits; Karen van Meeteren; Martijn Klem; Mattijs Alsem; Marjolijn Ketelaar
Journal:  Res Involv Engagem       Date:  2020-06-16

7.  Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents.

Authors:  Amanda Allard; Andrew Fellowes; Valerie Shilling; Astrid Janssens; Bryony Beresford; Christopher Morris
Journal:  BMJ Open       Date:  2014-04-19       Impact factor: 2.692

Review 8.  How and why should we engage parents as co-researchers in health research? A scoping review of current practices.

Authors:  Shuoqi Shen; Krissy A R Doyle-Thomas; Lori Beesley; Amir Karmali; Laura Williams; Nadia Tanel; Amy C McPherson
Journal:  Health Expect       Date:  2016-08-12       Impact factor: 3.377

9.  Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder.

Authors:  Helen McConachie; Nuala Livingstone; Christopher Morris; Bryony Beresford; Ann Le Couteur; Paul Gringras; Deborah Garland; Glenys Jones; Geraldine Macdonald; Katrina Williams; Jeremy R Parr
Journal:  J Autism Dev Disord       Date:  2018-04

10.  Parents' Expressions of Concerns and Hopes for the Future and Their Concomitant Assessments of Disability in Their Children.

Authors:  Niels Ove Illum; Mette Bonderup; Kim Oren Gradel
Journal:  Clin Med Insights Pediatr       Date:  2018-06-27
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