| Literature DB >> 21498484 |
Dafna D Gladman1, Proton Rahman, Richard J Cook, Hua Shen, Michel Zummer, Glen Thomson, Bindu Nair, Sherry Rohekar, Renise Ayearst, Robert D Inman, Walter P Maksymowych.
Abstract
The Spondyloarthritis Research Consortium of Cananda (SPARCC) is a transdiscliplinary research network of investigators interested in spondyloarthritis. The group has been supported by a new research initiative by The Arthritis Society. SPARCC aims to address the genetic basis of susceptibility of the disease and develop and validate clinical and imaging outcomes to assess disease activity and structural damage over time, the response to therapy, and the clinical burden of illness in terms of quality of life and disability. The first step was to develop a database that would allow ascertainment of phenotype for genetic studies, as well as accurate and detailed longitudinal information for disease expression and outcome studies. This article describes the SPARCC database and outlines difficulties and possible solutions for maintaining such a database.Entities:
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Year: 2011 PMID： 21498484 DOI： 10.3899/jrheum.101102
Source DB: PubMed Journal: J Rheumatol ISSN： 0315-162X Impact factor: 4.666