Literature DB >> 21496539

Long-term disease-specific quality of life in adult anorectal malformation patients.

Caterina Grano1, Dalia Aminoff2, Fabio Lucidi3, Cristiano Violani4.   

Abstract

BACKGROUND: Fecal and urinary incontinence may differently influence various aspects of quality of life (QOL). The main aim of the present study is to determine whether fecal and urinary incontinence measured at time 1 of the study will predict QOL at time 2 (after 4 years), above and beyond the prediction already explained by fecal and urinary incontinence at time 2.
METHODS: Thirty-six adult patients from the Italian Parents' and Patients' Association for Anorectal Malformations answered items about urinary and fecal incontinence at time 1 of the study and completed the Hirschsprung Disease/Anorectal Malformation Quality of Life questionnaire after 4 years from the first questionnaire. Two sets of hierarchical regression analyses were conducted with fecal and urinary incontinence serving as predictors of QOL and the different areas of QOL from the Hirschsprung Disease/Anorectal Malformation Quality of Life serving as outcome variables.
RESULTS: The principal findings indicated that fecal continence is a strong predictor of QOL in the areas of social functioning, emotional functioning, and body image and that urinary incontinence predicted sexual functioning.
CONCLUSIONS: It seems that one's past experience with fecal incontinence is extremely relevant to current QOL, especially for body image. Urinary incontinence contributed less in explaining QOL in our patients, but because it is very relevant for sexual functioning, it should not be disregarded.
Copyright © 2011 Elsevier Inc. All rights reserved.

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Year:  2011        PMID: 21496539     DOI: 10.1016/j.jpedsurg.2010.10.016

Source DB:  PubMed          Journal:  J Pediatr Surg        ISSN: 0022-3468            Impact factor:   2.545


  14 in total

1.  Postoperative complications in adults with anorectal malformation: a need for transition. German Network for Congenital Uro-REctal Malformations (CURE-Net).

Authors:  Dominik Schmidt; Ekkehart Jenetzky; Nadine Zwink; Eberhard Schmiedeke; Stefanie Maerzheuser
Journal:  Pediatr Surg Int       Date:  2012-08       Impact factor: 1.827

2.  Prevalence, Risk Factors, and Prognosis of Postoperative Complications after Surgery for Hirschsprung Disease.

Authors:  Wen-Kai Huang; Xue-Li Li; Jin Zhang; Shu-Cheng Zhang
Journal:  J Gastrointest Surg       Date:  2017-09-27       Impact factor: 3.452

Review 3.  Laparoscopic versus open repair of recto-bladderneck and recto-prostatic anorectal malformations: a systematic review and meta-analysis.

Authors:  Anna C Shawyer; Michael H Livingston; Deborah J Cook; Luis H Braga
Journal:  Pediatr Surg Int       Date:  2014-10-15       Impact factor: 1.827

4.  Quality of life in children and adolescents with anorectal malformation.

Authors:  Caterina Grano; S Bucci; D Aminoff; F Lucidi; C Violani
Journal:  Pediatr Surg Int       Date:  2013-09       Impact factor: 1.827

5.  Continence management in children with severe caudal regression syndrome: role of multidisciplinary team and long-term follow-up.

Authors:  Giacomo Esposito; Giorgia Totonelli; Barbara Daniela Iacobelli; Daniela Longo; Tamara Caldaro; Giulia Blasetti; Francesca Bevilacqua; Francesca Santato; Giulia Lucignani; Maria Laura Sollini; Carlo Efisio Marras; Pietro Bagolan; Giovanni Mosiello
Journal:  Pediatr Surg Int       Date:  2022-08-09       Impact factor: 2.003

Review 6.  Approach to the Adult Colorectal Patient with a History of Pediatric Abdominal Surgery.

Authors:  Nitin Sajankila; Anthony DeRoss; Jeremy M Lipman
Journal:  Clin Colon Rectal Surg       Date:  2022-08-12

7.  Feelings of depression in people with ARM: the role of critical incidents and perceived difficulties in close and sexual relationships.

Authors:  C Grano; S Bucci; D Aminoff; F Lucidi; C Violani
Journal:  Pediatr Surg Int       Date:  2014-07-04       Impact factor: 1.827

8.  Sacral neuromodulation for fecal incontinence and constipation in adult patients with anorectal malformation--a feasibility study in patients with or without sacral dysgenesis.

Authors:  Urte Zurbuchen; Joern Groene; Susanne D Otto; Martin E Kreis; Stefanie Maerzheuser
Journal:  Int J Colorectal Dis       Date:  2014-07-05       Impact factor: 2.571

9.  The role of coping strategies on health-related quality of life in adults with anorectal malformations.

Authors:  C Grano; M Fernandes; D Aminoff; S Bucci; F Lucidi; C Violani
Journal:  Pediatr Surg Int       Date:  2016-07-01       Impact factor: 1.827

Review 10.  Surgical treatment of anorectal malformations.

Authors:  Naomi Iwai; Shigehisa Fumino
Journal:  Surg Today       Date:  2012-11-30       Impact factor: 2.549

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