Literature DB >> 21487383

Adult outcomes of childhood-onset rheumatic diseases.

Aimee Hersh1, Emily von Scheven, Ed Yelin.   

Abstract

A number of studies published over the past 10 years have examined the long-term health, functional and quality of life outcomes of adults with childhood-onset rheumatic diseases such as juvenile idiopathic arthritis, systemic lupus erythematosus, juvenile dermatomyositis and localized scleroderma. As increasing numbers of patients with these conditions survive into adulthood, understanding the adult outcomes of these pediatric conditions has become ever-more important. Identifying modifiable risk factors for poor outcomes is vital to improving care for these patients. In addition, as these conditions and their treatments can affect cardiovascular health, bone health and fertility, particular attention needs to be paid to these outcomes. Preparing patients and their families for a successful transition from pediatric to adult rheumatology care is an important first-step in the long-term management strategy for this expanding patient population.

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Year:  2011        PMID: 21487383      PMCID: PMC3705738          DOI: 10.1038/nrrheum.2011.38

Source DB:  PubMed          Journal:  Nat Rev Rheumatol        ISSN: 1759-4790            Impact factor:   20.543


  47 in total

1.  Relationship between damage accrual, disease flares and cumulative drug therapies in juvenile-onset systemic lupus erythematosus.

Authors:  M Bandeira; S Buratti; M Bartoli; C Gasparini; L Breda; A Pistorio; S Grassi; M G Alpigiani; G Barbano; L L Janz-Junior; A Martini; A Ravelli
Journal:  Lupus       Date:  2006       Impact factor: 2.911

2.  Influence of childhood scleroderma on physical function and quality of life.

Authors:  Eileen M Baildam; Holly Ennis; Helen E Foster; Lindsay Shaw; Alice S E Chieng; Jane Kelly; Ariane L Herrick; Helen L Richards
Journal:  J Rheumatol       Date:  2010-11-01       Impact factor: 4.666

3.  Risk factors for damage in childhood-onset systemic lupus erythematosus: cumulative disease activity and medication use predict disease damage.

Authors:  Hermine I Brunner; Earl D Silverman; Theresa To; Claire Bombardier; Brian M Feldman
Journal:  Arthritis Rheum       Date:  2002-02

4.  Adolescents with juvenile idiopathic arthritis: who cares after the age of 16?

Authors:  D Hilderson; F Corstjens; P Moons; C Wouters; R Westhovens
Journal:  Clin Exp Rheumatol       Date:  2010-10-22       Impact factor: 4.473

Review 5.  Osteoporosis in childhood rheumatic diseases: prevention and therapy.

Authors:  Rolando Cimaz
Journal:  Best Pract Res Clin Rheumatol       Date:  2002-07       Impact factor: 4.098

6.  The influence of patient characteristics, disease variables, and HLA alleles on the development of radiographically evident sacroiliitis in juvenile idiopathic arthritis.

Authors:  Berit Flatø; Anna Smerdel; Virginia Johnston; Gunhild Lien; Knut Dale; Odd Vinje; Thore Egeland; Dag Sørskaar; Øystein Førre
Journal:  Arthritis Rheum       Date:  2002-04

7.  Frequency of osteopenia in children and young adults with childhood-onset systemic lupus erythematosus.

Authors:  Vibke Lilleby; Gunhild Lien; Kathrine Frey Frøslie; Margaretha Haugen; Berit Flatø; Øystein Førre
Journal:  Arthritis Rheum       Date:  2005-07

8.  Premature ovarian failure in women with juvenile idiopathic arthritis (JIA).

Authors:  J C Packham; M A Hall
Journal:  Clin Exp Rheumatol       Date:  2003 May-Jun       Impact factor: 4.473

9.  Gender and ethnic origin have no effect on longterm outcome of childhood-onset systemic lupus erythematosus.

Authors:  Paivi M Miettunen; Oliva Ortiz-Alvarez; Ross E Petty; Rolando Cimaz; Peter N Malleson; David A Cabral; Stephanie Ensworth; Lori B Tucker
Journal:  J Rheumatol       Date:  2004-08       Impact factor: 4.666

10.  Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus.

Authors:  Aimee O Hersh; Emily von Scheven; Jinoos Yazdany; Pantelis Panopalis; Laura Trupin; Laura Julian; Patricia Katz; Lindsey A Criswell; Edward Yelin
Journal:  Arthritis Rheum       Date:  2009-01-15
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  24 in total

1.  Comparison of clinical, serological, and prognostic differences among juvenile-, adult-, and late-onset lupus nephritis in Korean patients.

Authors:  Ji-Hyoun Kang; Dong-Jin Park; Kyung-Eun Lee; Ji Shin Lee; Yoo-Duk Choi; Shin-Seok Lee
Journal:  Clin Rheumatol       Date:  2017-04-25       Impact factor: 2.980

Review 2.  Improving care delivery and outcomes in pediatric rheumatic diseases.

Authors:  Julia G Harris; Catherine A Bingham; Esi M Morgan
Journal:  Curr Opin Rheumatol       Date:  2016-03       Impact factor: 5.006

3.  Pregnancy outcomes in women with childhood-onset and adult-onset systemic lupus erythematosus: a comparative study.

Authors:  Miguel Ángel Saavedra; Dafhne Miranda-Hernández; Antonio Sánchez; Sara Morales; Pilar Cruz-Domínguez; Gabriela Medina; Luis Javier Jara
Journal:  Rheumatol Int       Date:  2016-07-07       Impact factor: 2.631

4.  Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study.

Authors:  Jordan E Roberts; Olha Halyabar; Carter R Petty; Maria Alfieri; Brittany Esty; Johnathan Dallas; Melissa Hazen; Sandra Stein; Mary Beth F Son
Journal:  Pediatr Rheumatol Online J       Date:  2022-10-21       Impact factor: 3.413

5.  Inter- and intra-observer reliability of contrast-enhanced magnetic resonance imaging parameters in children with suspected juvenile idiopathic arthritis of the hip.

Authors:  Francesca M Porter-Young; Amaka C Offiah; Penny Broadley; Isla Lang; Anne-Marie McMahon; Philippa Howsley; Daniel P Hawley
Journal:  Pediatr Radiol       Date:  2018-08-03

6.  Clinical features and long-term outcomes of systemic lupus erythematosus: comparative data of childhood, adult and late-onset disease in a national register.

Authors:  S Sousa; M J Gonçalves; L S Inês; G Eugénio; D Jesus; S Fernandes; G Terroso; V C Romão; M Cerqueira; A Raposo; M Couto; P Nero; G Sequeira; T Nóvoa; J A Melo Gomes; J Canas da Silva; L Costa; C Macieira; C Silva; J A P Silva; H Canhão; M J Santos
Journal:  Rheumatol Int       Date:  2016-03-15       Impact factor: 2.631

7.  Acceptable quality of life and low disease activity achievable among transition phase patients with rheumatic disease.

Authors:  Heikki Relas; Silja Kosola
Journal:  Clin Rheumatol       Date:  2018-10-29       Impact factor: 2.980

8.  Clinical and laboratory features, disease activity, and outcomes of juvenile systemic lupus erythematosus at diagnosis: a single-center study from southern China.

Authors:  Wengen Li; Sudong Liu; Liuming Zhong; Chao Chen
Journal:  Clin Rheumatol       Date:  2021-06-17       Impact factor: 2.980

9.  Patterns of Healthcare Use and Medication Adherence among Youth with Systemic Lupus Erythematosus during Transfer from Pediatric to Adult Care.

Authors:  Joyce C Chang; Andrea M Knight; Erica F Lawson
Journal:  J Rheumatol       Date:  2020-02-01       Impact factor: 4.666

10.  Assessment of transition readiness in adolescents in Thailand with rheumatic diseases: a cross-sectional study.

Authors:  Sirinthip Kittivisuit; Butsabong Lerkvaleekul; Sirisucha Soponkanaporn; Pintip Ngamjanyaporn; Soamarat Vilaiyuk
Journal:  Pediatr Rheumatol Online J       Date:  2021-06-30       Impact factor: 3.054

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