Literature DB >> 21402659

'A bridge to the hospice': the impact of a Community Volunteer Programme in Uganda.

Barbara A Jack1, J Kirton, J Birakurataki, A Merriman.   

Abstract

In Africa, the need for palliative care provision is escalating with an increasing number of people living with HIV/AIDS, coupled with rising cancer and AIDS-related cancer diagnoses. In Uganda there is a shortage of doctors, particularly in rural areas. To address this Hospice Africa Uganda developed a Community Volunteer Programme to train volunteers to help by providing support to patients in their own homes. The aim of this qualitative study was to evaluate the impact of the Community Volunteer Programme. Sixty-four interviews, with patients (21), community volunteer workers (CVWs) (32), and the hospice clinical teams (11) were conducted, using semi-structured digitally recorded individual, group and focus group interviews, at the Hospice Africa Uganda sites. The results reported the value of the Community Volunteer Programme, including the impact on patients and families, and how the CVWs acted as a 'bridge to the hospice' in identifying patients. Developing financial challenges that are emerging which could potentially impact on the programme were reported. The Community Volunteer Programme appears to be having a positive impact on patients, families and the hospice team, and is a model worthy of consideration by other developing countries to allow the expansion of palliative care.

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Year:  2011        PMID: 21402659     DOI: 10.1177/0269216310397566

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  19 in total

1.  A Pilot Study of Palliative Care Provider Self-competence and Priorities for Education in Kenya.

Authors:  Rebecca Sedillo; Maria Mia Openshaw; Janine Cataldo; DorAnne Donesky; Juli McGowan Boit; Alison Tarus; Lisa M Thompson
Journal:  J Hosp Palliat Nurs       Date:  2015-08       Impact factor: 1.918

2.  "Find Out What They Lack, Try to Provide": A Qualitative Investigation of Palliative Care Services Adapted to Local Need in a Low-Resource Setting.

Authors:  Grace H Taylor; Eric L Krakauer; Justin J Sanders
Journal:  J Palliat Med       Date:  2020-01-07       Impact factor: 2.947

3.  A Qualitative Study on the Position and Role of Volunteers in Integrated Care-An Example of Palliative Care in Croatia.

Authors:  Dorja Vočanec; Karmen Lončarek; Maja Banadinović; Slavica Sović; Aleksandar Džakula
Journal:  Int J Environ Res Public Health       Date:  2022-07-05       Impact factor: 4.614

4.  Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.

Authors:  Regina M Fink; Danielle M Kline; F Amos Bailey; Daniel L Handel; Sarah R Jordan; Hillary D Lum; Stacy M Fischer
Journal:  J Palliat Med       Date:  2020-01-16       Impact factor: 2.947

Review 5.  Training and supportive programs for palliative care volunteers in community settings.

Authors:  Dell Horey; Annette F Street; Margaret O'Connor; Louise Peters; Susan F Lee
Journal:  Cochrane Database Syst Rev       Date:  2015-07-20

Review 6.  The current situation in education and training of health-care professionals across Africa to optimise the delivery of palliative care for cancer patients.

Authors:  Fm Rawlinson; L Gwyther; F Kiyange; E Luyirika; M Meiring; J Downing
Journal:  Ecancermedicalscience       Date:  2014-12-11

7.  Understanding the role of the volunteer in specialist palliative care: a systematic review and thematic synthesis of qualitative studies.

Authors:  Rachel Burbeck; Bridget Candy; Joe Low; Rebecca Rees
Journal:  BMC Palliat Care       Date:  2014-02-10       Impact factor: 3.234

8.  Volunteers in specialist palliative care: a survey of adult services in the United Kingdom.

Authors:  Rachel Burbeck; Joe Low; Elizabeth L Sampson; Ruth Bravery; Matthew Hill; Sara Morris; Nick Ockenden; Sheila Payne; Bridget Candy
Journal:  J Palliat Med       Date:  2014-01-29       Impact factor: 2.947

9.  Motivations for entering and remaining in volunteer service: findings from a mixed-method survey among HIV caregivers in Zambia.

Authors:  Stephanie M Topp; Jessica E Price; Tina Nanyangwe-Moyo; Drosin M Mulenga; Mardieh L Dennis; Mathew M Ngunga
Journal:  Hum Resour Health       Date:  2015-09-02

10.  Community systems strengthening for HIV care: experiences from Uganda.

Authors:  Gitau Mburu; Danielle Oxenham; Ian Hodgson; Alice Nakiyemba; Janet Seeley; Alvaro Bermejo
Journal:  J Soc Work End Life Palliat Care       Date:  2013
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